Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-07-2015, 09:43 PM #11
maygin maygin is offline
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Default Pain management

I'm so sorry you are going through this. I can't speak to the BP meds issue, but I have a few thoughts for reducing pain without medication. Two things have really helped me - restorative yoga and MBSR. Restorative yoga is NOT the typical yoga thay tends to pop in people's minds when they hear yoga. Instead, these poses are designed to help your body heal and relax. You lay in a pose for 20 minutes. I took a 2 hour restorative yoga workshop and it was the first thing to move the pain down for me besides meds. The other thing has been the Mindfulness Based Stress Reduction course I'm taking. There is an online version of the course and a workbook you can do by yourself if a class isn't an option. It's more than meditation, though that and gentle yoga are a big part of it. Meditation by itself may be an option and the creator of the course, Jon Kabat-Zin, also made a Meditation for Pain CD you could look into. I was super skeptical of meditation and resisted it (and didn't do much of the homework), but it has really opened up space to make the pain more tolerable.

To be clear, I do take pain meds. But between yoga, meditation, and acupuncture, I hope one day to cut back or eliminate medication. Hope this helps and you find a solution soon!
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Jennijojo (05-12-2015)
Old 05-12-2015, 02:42 PM #12
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Default Update.

My heart rate was in the 30s and it felt like it just kept stopping beating the other day. It was horrible I couldn't breath ugh. Anyways I had to get in to a dr since mine is always on vacation. So I saw a different one who took me off the beta blockers cause he said my heart rate was deadly. He also told me they don't help with the circulation issues but still clung to ace inhibitors not being a problem. So he increased those. he also thinks I have a mutation of mthfr and is testing for that. At least I won't die from my heart stopping. But I feel like I'm gonna need to break ties with my regular dr.
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Old 05-14-2015, 07:06 AM #13
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So sorry you're struggling. My RSD began in my dominant arm also. I'm allergic to most oral pain meds so needed to find alternatives. I have success with ibuprofen and Tylenol w/codeine. Sometimes I combine the 2 for severe situations. Arnica tablets could also be tried (health food store). Stay strong and know we all feel for you and want to help. I spent allot of time with my arm just propped up on a pillow.
Soft hugs, suz66
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