AND FINALLY! Here is a study about how RSD makes your vision worse. I hope you feel validated! Share this with your doc so he can feel ahead of the curve - and stop ordering unnecessary tests. Roll it up first and b**ch-slap the nurse. xoxoxo
Pathologic pain distorts visuospatial perception Spatial perception is achieved by integrating multisensory information. Using visual subjective body midline (vSM) judgments in patients with unilateral limb pain (complex regional pain syndrome [CRPS]), we found that their vSM deviated toward the affected side; however, deafferentation of the affected limb caused a transient pain decrease and a transient shift of the vSM deviation toward the unaffected side. Our results indicate that the persistent pain state in CRPS distorts visuospatial perception. .Sumitani,M.; Shibata,M.; Iwakura,T. et al. Neurology.68(2):152-4,2007 Jan 9

Awwwwwwwwww.. Ang, When you hurt, I hurt! gentle loving hugs Dear sweet friend! Love ya! Desi

HI Desi, it is terrifying. I have been through stages of everything you are saying and have searched the symptoms pages in the early years of this and I too had them all just about. I dont go there anymore as it is always in the end the rsd. It alone is so horrible. try not to torture yourself. Dont overdo like the bike ride it will cause major flare ups later, a few hours later. Gentle exercise Ok. take care, CZ

well, i'm awake. because i'm not taking any meds i didn't sleep well last night. i woke up and woke up and finally at 3am i went downstairs and watched "goonies" until i fell asleep. my husband so generously hogged the bed and had the air conditioner and fan blowing (which KILLS me) so i played musical beds until i ended up on the couch for good. my poor kids.

anyway, my husband yelled at me this morning (if you call 9am morning - by then, the kids and i are ready for lunch). he said i was pounding when i walked and that i was stomping around on purpose. i'm telling you, my body is nuts. i look like i have parkinsons or something because i am trying to keep everything stable. my neck is weak. my legs are weak. my arms and hands...

it's raining and cold today. i like it. i feel that if i want to stay inside and try to sleep all day nobody is going to fuss at me for being inside when i should be outside enjoying the beautiful weather.

screw 'em.

xoxoxoxoxoxo to you all for being so lovely. i wish we all lived in a commune.

you are not mad! I promise! I really really promise!!! unfortunatly what you are going through is something most of us know - and yep, it sucks so much!

Sending you so many hugs!!

Love ya tons

Frogga xxxxxxxxxxxxxxxxxxx

PS - Molls, love ya babes!! that article is brilliant! makes me feel normal (er). xxxxxxxxx

if i could reach my arms out to you all, i would. i feel really great today. no pain and only a little wobbly.

AAAAANNNNNNNNNNNNDDDDDDDD.........

i got an 85% on my chapter reviews for psych!

i was reviewing my grades so far and i have 3-100% , 1-62% and 1-85% . I am doing really well on the things I can control (like writing papers and homework-all 100's) and it shows how the rest of the class is doing. one thing i got 100 on the class average was like 63%.

so anyway, this last chapter in the book was talking about drugs - something i am so familiar with as are all of you, i'm sure. and then i began to really research what i was taking. and do you know that amitriptyline can cause muscle spasms and seizures? and going off can cause the same? i guess it would help if i remembered what i was doing at the time because the spasms are still here - but minimal. and every other day i decide i need sleep so i take a pill.

i swear, you guys, i am manic. i feel really happy. i rode my bike almost 10 miles today and my cyclometer that i got last season rolled over 300 miles! woo hoo! i'm not hurting and i'm having a great day. i am going to have my brain scan tuesday and i think they are going to find that i have 2 brains and i am smarter than all of them . i asked in another post is there such thing as a spine MRI or do they mean a spinal tap? i am so sick and tired of trying to research stuff right now. i'm researched out.

as i sit here my arm is throbbing a bit and the skin on my hands is so shiny that the reflection from my lamp could blind me at a moments notice. i better go and try to hypnotize myself into thinking that my pain is not really pain at all (i learned about the beauty of that too ). i also learned about accupuncture and pain control (which i think i might try) and meditation which i am going to start practicing.

after all of my tests i am taking the kids and going down south to stay with my sister for a bit. haven't decided how long yet and since i don't have to be IN school i can do it from her computer. she has an in-ground pool, a hot tub and a bunch of 4 wheelers. they are building a huge house in the woods so i might help with that or i just might sit my big butt by the pool till i fry. she has kids that will watch mine so i am set. AND she has lots of therapeutic stuff (she is a territory manager for EMPI and gave me my TENS and some other novelties). and since i can't stand my husband right now i am not even going to THINK about coming home for awhile. he can come home for lunch and let the dogs out.

love and hugs to you all - and to all a good night!



angie

You did a 10 mile bike ride? You're going to fry yourself in the sun?


all the best.

Hi Unrouley,

Yes there is such a thing as a spinal MRI.
They can do a cervical, thoracic, lumbar MRI or one of all three.
I hope you don't pay for that long bike ride, but happy you could even do it

HOPE

yes, i did almost 10 miles before it started to pour down rain. i used to do it all the time (my record is a 70+ mile ride). i am fine this morning. just a little dull ache, however i DID take a sleeping pill last night. i wanted to let my natural endorphins work a bit, but i wasn't sure how well it would work.

i have a recumbent bike and it is so ridiculously comfortable. that is why i can ride so long.

cheers!

I LOVE to hear when RSD comes into remission OR when folks realize that drugs were kicking their butts, not the RSD. There isn't too much good news, around here so thanks for sharing yours! And more power to you for getting some exercise and endorphins pumping, too!
Congrats on school!!! Sounds like your well-earned vacation (with child care !!!) is just what you need.
I'm so glad for you. Great Big Hug!