Me too "just feeling like a foot" made me smile. Congrats Littlepaw and thanks for the progress report.

I hope and pray these do the trick! Glad to read your uodate!

I am so happy that your infusions are working for you , Littlepaw..
Thanks for your update.

Hi Littlepaw,

Sorry I'm coming late to this update, I missed it amongst the chaos in my life.

I am so pleased you are beginning to see some real benefit from the Ketamine, I think it is an underused wonderdrug in all it's forms. Glad your foot is feeling 'footy'.

I get the colours around the tv when I push the dose of my Ketamine, if they persist or are enhanced enjoy them by trying to manipulate them, make them swirl or flow, or brighten and dim. Just make sure you stay relaxed and in a positive mood.

Dave.

Hello All,

I am making some progress! What is so thrilling is that because of vacation and now holiday office closure I will have gone three weeks in between infusions and I still feel it is doing something. Clearly it is not just from anesthetic effect or high doses over days and days. Maybe there is something to the idea of breaking pain memory to reduce other symptoms. So far...

Color difference is improved. Swelling is improved, though mild it was there and causing discomfort. Nerve seems to be Moving some and not so stuck, probably due to less swelling. Stinging sensations at the 4 inch incision on the sole of my foot are gone! I still have stinging at the five inch incision at my ankle when standing but it feels more superficial and less deep. I am sleeping better because I am more comfortable.

This is working like I hoped in that I am using the improvement to push recovery and activity. This means I sometimes overdo as I test limits but I seem to recover more quickly. My greatest hope is that I can increase strength, motion and endurance while the infusions are on board and have that improvement hold. I am still on nortriptyline but only taking Ibuprofen and Tylenol for pain.

I can honestly recommend low dose ketamine at this point as something to try. I am still not suffering side effects other than the same day sleepiness and lethargy. No post-infusion weirdness like I have read about. I had slight nausea for maybe 15 minutes afterwards with the dose increase last time but it resolved quickly and I was fine. I tend towards nausea anyway.

Thanks for the prayers and support! I really do appreciate it.

That is so exciting to hear! Thanks for the update!

Hello Littlepaw and everyone else!

I'm new here and was just diagnosed with this horrible thing after 2 years of symptoms. Have had 2 foot surgeries for neuroma removal, think 1st one brought on CRPS but ortho recommended 2nd one (should've have done it!) as we thought neuroma was growing back.

I went to a neurologist last week who definitively diagnosed me with CRPS.

I'm on Baclofen, Gralise, and Tramadol (prn, but take daily). Very interested in starting IV Ketamine. Currently I'm working as an RN, have had to cut my hours by 2/3rd and not sure if I'll even be able to continue working at all due to my symptoms.

If wouldn't mind can you PM me, or state here, but wonder who you're seeing in Austin for treatments. If anyone else has suggestions I'd very much appreciate them. Currently have a pain management doctor at Austin Pain Associates.

Thanks so much, wonderful community here!

Hi and welcome Martha! I will send you a PM.

Thanks so much!

Hate to 'double post', but see no other way to do this since I can't pm or do other messaging.

Thanks for 'visitor message' Littlepaw! I had a Morton's neuroma in my left foot, saw a podiatrist, then saw an orthopedist here in Austin for the surgeries. Once I get my permissions here I'll send you more details, could be handy down the road.

I was pretty happy with my surgeon, he implanted the cut nerve ends deep into muscle but apparently they still tried to grow back I guess. Just don't think there was any way around having the first surgery at least, but now am stuck with this burning hot sensation in the entire forefoot with numbness up to my knee on left side of leg. I don't wear shoes or let anything touch foot unless I have to, like while at work. Have used ice, soft socks, heat, everything modality there is except physical therapy which I hope to start soon.

I have high hopes for IV ketamine after watching some YouTube lectures on CRPS last night, read some medical publications. Living a life like this, and/or in eventual poverty if I can't work, is not a happy thought. Feel like all of my friends and family are sick of hearing me whine, too. Haha!

Have a great day,will definitely follow your posts and read more about the condition itself here on forum. I really appreciate your time and your very upbeat attitude! Love talking to another Austin gal.