Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-16-2015, 08:00 AM #19
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Join Date: Nov 2014
Posts: 1,537
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Welcome to the forum fellow Austinites. I am so sorry your daughter and family are going through this! Try to stay hopeful and remember that children and teens have the best odds of beating this thing. They are actually quite high in her favor per literature. Get that girl in the pool as much as you can and doing plenty of gentle exercise as tolerated, exercise bike, etc. Keep that sluggish blood movin' to remind the nervous system what to do with it.

Heck I say go ahead and look into all your options. It never hurts to get information. You can always keep info in your back pocket and choose later whether to use it. Ketamine is really pretty safe, used frequently in ER and other settings for anesthesia since you don't stop breathing on it even in higher doses. Don't worry about how it goes for me unless the staff is flat out cruel and incompetent which seems unlikely. We all respond differently to different treatments.

Dose is 0.5 milligrams per kilogram. A low easy start to see how I react and if that works for me, why give more than necessary? I like that the treatment seems a little tailored to specific needs. I was wrong on the cost, it is even less. Doc said 400 but billing called and told me 300!

Capitol Pain institute on Shoal Creek. Dr. Schocket started the clinic but ask who has the most experience with your daughters age group. They may have another recommendation for PM for teens.

Sending Healing Love and prayers, Littlepaw

Last edited by Littlepaw; 05-16-2015 at 02:28 PM.
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