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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Senior Member
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I am starting ketamine infusion on Monday
![]() ![]() They do a less frequent protocol for people who are not super severe. So either once a week or every other depending on my response for the first batch then once a month then boosters as needed. $400 per infusion, they say insurance usually covers. I am wondering why so many people run into waiting lists. This was really easy. I encourage everyone to keep after what you need and not wait forever. If the big practices can't do it there may be small practices that do. I found three in Austin and didn't even check everywhere. I pray this knocks this pain out. I know I could be worse and so many ARE worse but I am still pretty limited and it takes so little to knock my nerve which is now screaming into overdrive (thank you stupid cold laser) I have had enough of the 500 fire ants living in my ankle again when I put it down. Please send prayers and hugs. I am nervous and fearful. Now that I see how little it takes to bring my pain back I feel this is probably my best chance and am afraid to consider what it means for the future if it doesn't work. ![]() Healing Love to all ![]() |
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"Thanks for this!" says: | birchlake (05-15-2015), CRPSsongbird (05-27-2015), DejaVu (11-01-2015), Gunny Fitz (05-13-2015), Jerie (05-17-2015), Leggiesmcb (08-01-2015), maygin (05-14-2015), scubaforsythe (05-13-2015), vintagewine (09-06-2015) |
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#2 | ||
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Please keep us posted....ldn neuro toxic....hmmm need to look into that...keep up the fight....
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#3 | |||
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Magnate
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Hi Littlepaw,
Wishing you the very best of luck with Ketamine Infusions. I take Oral Ketamine 4 times a day for the Neurological burning and it reduces it by 50%. I am pushing my nighttime dose at the moment, so am bordering on hallucinatory side effects, but all I get is pretty colours around the tv. Dave.
__________________
You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
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#4 | |||
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Senior Member
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I was really surprised by this and can't find one thing about it. ????? From what he said I got the impression that it is at higher doses. Doc said at lower compounded doses may not be a problem but he didn't want to take chances on people with known nerve damage. You would think there would be at least one article on this in Pubmed. I will have to ask next time as there are such good reports on LDN...hmmmm.
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#5 | ||
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Junior Member
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I found LDN increased my pain. I thought it was useless and quit after a few months.
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#6 | |||
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Magnate
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Littlepaw,
Only a few hours to go, wishing you all the best. Dave.
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You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
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#7 | |||
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Senior Member
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Thanks so much to everyone for the support. It was nice going in with that. I am all done and no more goofy than usual. Took a nice nap with my kitty when I got home. The ketamine infusion was easy and pleasant. They put in a little versed so I was relaxed.
The music suggestion was really helpful. It blocked ambient noise and gave me something to focus on. I put my mind in the pleasant direction of thinking about places I have been where I felt really good. This seemed to work well and I was calm and peaceful. Overall, no problems, no nausea, no weirdness. Yeah! I don't know if these will work as I hope but I do know it is cumulative and it certainly wasn't difficult so I will go for the next one and post results when I feel there is something to report. Sending Healing Love, Littlepaw ![]() |
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"Thanks for this!" says: | DejaVu (11-01-2015), EnglishDave (05-18-2015), Lara (05-18-2015), swimtime (05-18-2015), vintagewine (05-31-2015) |
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#8 | ||
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Magnate
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It had been so may years since I had been pain free that I started laughing and crying when I had my first infusion because it was so shocking to feel normal. It made me realize even when I have other forms of anesthesia I'm never truly pain free.
Did you feel major relief? |
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"Thanks for this!" says: | DejaVu (11-01-2015) |
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#9 | ||
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Member
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Let the countdown to Monday begin! 6 days, you can do it! Believing and praying it will give you relief. Keep us posted. Glad you found a doctor you like, too.
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#10 | ||
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Magnate
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$400 is very reasonable. It is a very simple procedure and there shouldn't be waiting lists. The biggest thing is they need the right pump that can didperse the K at the correct speed.
Put together a playlist with only positive music. Preferably with no lyrics. It can make a big difference. Bring someone you trust and are in a good place with! |
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