Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-12-2015, 02:45 PM #1
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Thumbs up Getting ketamine infusion

I am starting ketamine infusion on Monday . My God I hope this does something! I finally broke down and went to a new PM today after being thoroughly unimpressed with my first venture. Chose the doc from positive Yelp reviews and knowledge that they do ketamine in office. The doctor was agreeable, no nonsense, non-blaming and for now didn't try to talk me into anything I didn't want. What a concept. Oh, also he is not crazy about LDN citing it is mildly neurotoxic. I had not encountered this info before. He says he likes ketamine much better.

They do a less frequent protocol for people who are not super severe. So either once a week or every other depending on my response for the first batch then once a month then boosters as needed. $400 per infusion, they say insurance usually covers. I am wondering why so many people run into waiting lists. This was really easy. I encourage everyone to keep after what you need and not wait forever. If the big practices can't do it there may be small practices that do. I found three in Austin and didn't even check everywhere.

I pray this knocks this pain out. I know I could be worse and so many ARE worse but I am still pretty limited and it takes so little to knock my nerve which is now screaming into overdrive (thank you stupid cold laser) I have had enough of the 500 fire ants living in my ankle again when I put it down.

Please send prayers and hugs. I am nervous and fearful. Now that I see how little it takes to bring my pain back I feel this is probably my best chance and am afraid to consider what it means for the future if it doesn't work. Ugh so scarey....

Healing Love to all
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Old 05-12-2015, 04:00 PM #2
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Please keep us posted....ldn neuro toxic....hmmm need to look into that...keep up the fight....
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Old 05-12-2015, 04:24 PM #3
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Hi Littlepaw,

Wishing you the very best of luck with Ketamine Infusions. I take Oral Ketamine 4 times a day for the Neurological burning and it reduces it by 50%. I am pushing my nighttime dose at the moment, so am bordering on hallucinatory side effects, but all I get is pretty colours around the tv.

Dave.
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Old 05-12-2015, 05:52 PM #4
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Quote:
Originally Posted by Enna70 View Post
Please keep us posted....ldn neuro toxic....hmmm need to look into that...keep up the fight....
I was really surprised by this and can't find one thing about it. ????? From what he said I got the impression that it is at higher doses. Doc said at lower compounded doses may not be a problem but he didn't want to take chances on people with known nerve damage. You would think there would be at least one article on this in Pubmed. I will have to ask next time as there are such good reports on LDN...hmmmm.
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Old 05-12-2015, 10:06 PM #5
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Let the countdown to Monday begin! 6 days, you can do it! Believing and praying it will give you relief. Keep us posted. Glad you found a doctor you like, too.
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Old 05-12-2015, 10:18 PM #6
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$400 is very reasonable. It is a very simple procedure and there shouldn't be waiting lists. The biggest thing is they need the right pump that can didperse the K at the correct speed.

Put together a playlist with only positive music. Preferably with no lyrics. It can make a big difference. Bring someone you trust and are in a good place with!
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Old 05-12-2015, 10:38 PM #7
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Quote:
Originally Posted by Littlepaw View Post
I am starting ketamine infusion on Monday .
I so hope it helps you. I would ask if they give you anything for nausea or halucinations before or during the infusion. They usually give something like zofran and versed. Also find out how much they're giving you.

I just had a one day high dose a couple of weeks ago (my first ever) and it was a whopping amount. There was no reading or music. I was completely out for four hours, and it took another three hours after the infusion was stopped for me to be with it enough to be dumped into the car and taken home I had no idea from what I'd read of others' accounts it would be like that. It's good to know.

Good luck!

Denise
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Old 05-13-2015, 03:50 PM #8
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Best wishes and hope it works wonders!
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Old 05-13-2015, 05:11 PM #9
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Started mine about 2 months ago and I really should wait until AFTER you have yours before saying anything - but will keep it low key. LOL

It was the most bizarre and unreal trip Ive ever had and don't know how people use this drug for recreation out there in places! What is good though, is that you are (you should be so make sure you confirm) are able to have your loved one (Wife, Husband, daughter or son) there with you in the same room with you while doing it. I would think you are only doing the 1 hour treatment first right? Well make sure they are inside same room since they don't put you "out" during it and it is comforting to know they are right there if things become a bit scary at times. My wife and my Service Dog were right there the whole time.

Did it work for me? Well, depends on what the reason is you are going in for it on.
Pain, PTSD, anxiety, depression, suicidal ideations? Any of these, because thats what the 1st 1 hour session is actually for based on what my Dr told me - or what its been shown to work best on i guess I should say? So my answer is YES IT WORKED!

I felt "lighter" if that makes sense. And more pain free for awhile. It worked on me and I will actually be going back for my day long session sometime next month too!
PLEASE be sure to debrief us all on your thread here about your experience and how things felt for you LittlePaw! Nothing to worry about at all. They will give you something to make sure you are calm, but try your best to be calm and in good spirits too ok? It all helps you out during the treatment - think positive thoughts since our mind can help the body in ways we never thought of!

Peace be with you my friend!
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Old 05-13-2015, 05:29 PM #10
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Oh such wonderful news!!! Definately keep us posted!!
Sending healing prayers
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