Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-28-2015, 03:47 AM #1
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Morgan it's an idea and I'll try it trouble is even if it works can't run distilled water through the shower or afford 4800 gallons of it to fill the swimming pool
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Old 05-28-2015, 08:38 AM #2
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Reminder.... one does not have to be taking an ACE drug to have excess bradykinin. It will just happen faster.

People who have problems metabolizing bradykinin away, will always have it....see that link I provided earlier about HAE.

Bradykinin exists in normal amounts in people with C-1 inhibitor actions. It is the body's reaction to physical and chemical trauma
stimuli that releases it. People with defective C-1 inhibitor have long reactions to bradykinin therefore. (this is acquired and/or genetic or both).

The FORCE of the water from a shower is more likely the culprit.
Temperature of the water also a factor. Some people on our PN forum react to Chlorine in pools with pain.
If you can slowly pour lukewarm water on yourself slowly and not get a reaction....I'd look at the force and temperature of the shower itself as a trigger.
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Old 05-28-2015, 11:05 PM #3
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Shower is at lukewarm because I cannot stand anything else. Due to hypersensitivity water does not directly hit any of my CRPS areas, for the leg it is aimed at the thigh and allowed to trickle down
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Old 06-08-2015, 03:00 AM #4
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If you think you have this stop washing the affected area. In 2 weeks the wound healed completely and last Thursday the skin started flake off leaving new skin underneath
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