[vintagewine]

Hi everyone,

I have tried many medications and I have gotten side effects from most of them , so I had to be weaned off of them.

This stinging pain gets unbearable!!

The pain = gives me stress = gives me more pain= and causes more stress
and so on and so on and so on ....... It's a vicious cycle!

I know everyone is an individual and reacts differently to medications.

I would greatly appreciate it if anyone here can suggest a medication or combinations of medications and/or treatments that have helped them with this horrible stinging allodynia pain?

If I haven't tried it yet, I will talk to my PM doctor about them.

Many thanks in advance

[Littlepaw]

Hi VintageWine,

Have you tried many compounded Topicals or lidocaine? I use a ketoprofen, ketamine, gabapentin cream that I like. I also use lidocaine cream sometimes. Some people like the patches.

I have read that allodynia can be a sign of centralization. The NMDA antagonists address that. So ketamine or Dextromethorphan if you want to try OTC cough syrup first. I have tried dextromethorphan and it does help some.

I hope you find relief soon. Sending hugs

[vintagewine]

Hi littlepaw,


Lidocaine cream and patches don't help me.

I use a compound cream but I will talk to my pm dr. about the other ingredients you mentioned.

I'll look into the OTC cough medicine too

****I hope you are still feeling much less pain from the ketamine infusion. *****

I keep all of you here in my prayers.

I chickened out of going for the infusion because of what quite a few people told me about the side effects. I may consider that again .

Thanks so much for your suggestions... {{ HUGS }}

[Littlepaw]

I am going for infusion number two in the morning. I will post a little follow up a couple days later when I know what effect it had. It really was easier than I thought, probably owing to the low dose. I didn't have any problems afterwards. Of course mine are not back to back either.

You can look up dextromethorphan and CRPS. It is obviously not as strong an antagonist as ketamine but is used. The new gazillion dollar drug Nudexta is Dextromethorphan with quinidine to enhance absorption.

I really like the compound I use, it has a nice texture and absorbs well. try different combos. I had one I couldn't stand once, totally sticky and bleh.

[EnglishDave]

Hi vintagewine,

Have you tried Lidocaine Infusions? They are a totally different animal to creams, viscous or patches.

You must also consider treatment for your stress. As you have found this has a physical effect, and untreated can lead to far more serious mental issues.

Dave.

[vintagewine]

HI LITTLE PAW,

All the best of luck on your next infusion. I'll be looking forward to hearing from you and I hope you will get even better results than the last one {{ HUGS }}


HI ENGLISHDAVE,

Thanks very much for your suggestions and I appreciate them.

I haven't tried lidocaine infusion. Another PM doctor I went to didn't recommend them because he said it could effect the heart. He recommended
the ketamine one instead. I'll look into that again . Someone I know went for the lidocaine infusion and they were in low pain for only three hours, and then their nerve pain fired up again.

My dr. told me that the stress and pain I mentioned are part of what's known as the chronic pain cycle. It's also hard to relax and destress when I'm in so much pain.
I've tried to meditate, but my I can't seem to concentrate when I'm in this much pain.

My parasympathetic nervous system seems to have a mind of it's own !

Thanks to both of you once again......

[EnglishDave]

Hi vintagewine,

Yes, Lidocaine can cause damage to the heart, especially if the Infusion runs too fast. But I have been having them since '07, had a heart attack in '08 (unrelated) and I have coronary ischaemia and microvascular disease on top of the heart damage. My Cardiologist still oks the Infusions.

I have extreme Neurological Hypersensitivity, Neuropathic Facial Pain and compressed spinal cord from neck injuries. Well, that is the pain the Lidocaine treats - with Oral Ketamine top-up. At the end of the month (4 weekly Infusion cycle) my pain is a 9. After Infusion and my meds, a 4-5. That is except for the days the Cluster Headaches and TN strike, then all numbers are meaningless for hours.

As for Meditation, it takes patience and practice. Try this simple 5-10 minute Buddhist Breathing Meditation to clear the mind.
Sit comfortably upright in a chair in a silent room with no distractions.
Close your eyes half way.
Let your mind focus on the feeling of your breath entering and leaving your nose and body.
Do not change your breathing, simply concentrate on it and let all other thoughts fade away
When you reach Clarity of Mind, concentrate on that feeling.
If you feel your mind wandering, return your focus to your breathing.

A 10 minute session should bring 1,2,3 minutes of Clarity which will become easier to achieve and expand as you practice.

Another possible medication to discuss is Topiramate, or other alternative Anti-Convulsants. I take Topiramate for my Cluster Headaches and noted a marked decrease in pain when I recently increased dose. These meds are now being found to be helpful in treating Neuropathic pain.

Dave.