Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-07-2015, 10:31 PM #4
happygirlpa happygirlpa is offline
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Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
Default same with me

Hi there! Your message sure sounds like what i experience with this. For me it took several years before i was diagnosed. Eventually a wonderful rheumatologist reviewed my records from various other doctors and was able to put a name on it. Trns out mine stemmed from spinal nerve root injury which occured when i had lumbar surgery. Initially my foot swelled horrifically and turned purple. Searing pain. It has calmed down but my foot swells and turns red when i stand or sit for any length of time. An EMG/NCS test confirmed the nerve damage so i have crps 2. I get buzzing, tingling, twitches,all the time, the feelings were making me crazy like a drippy faucct or constant ticking of a clock. I kept telling myself, this is too weird, and i devrloped anxiety just laying in bed focusing on these strange sensations. Even now 5 years latet, i am accustomed to it, but still they drive me crazy! Gabapentin or lyrica just makes the vibrations stronger so i dont take it. I find it helps not to over tax myself. If i do more than i should the vibrations go crazy esp in my legs. I take cymbalta and the rheumy gave me mucsle relaxers which do help to settle down the vibrations and twitching. Hope this info is helpful to you.
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