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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-09-2015, 06:44 PM #1
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Quote:
Originally Posted by scubaforsythe View Post
Sorry in advance this is somewhat of a vent, poor me, I'm not really sure...

Ok, I was told in the beginning, by two doctors, one an Orthopedic doctor, the other was the one workers comp sent me too that this is CRPS. The PM doc, after initial visit didn't think it was. After the block, he now says yes it is.... it's real...

I thought when he told me today, awesome, now they can fix it. BUT, I arrived home, sat down by myself in the living room, like I always am, and it really hit me.

Wow, feeling all that at one time... I admire you who have been dealing with this for years and have been able to keep up the fight!!! This is huge!!!

I was told they are going to do a series of blocks that will happen every 3 days. I don't know how many they plan on trying, but he did mention if this does not work, there is a pump, that they will put in, a temp to start, then see from there. I have no other info, and really don't think I could understand it now anyways. Oh he also upped my Lyrica to 225 twice a day I will do my best not to post idiotic, drunken posts, because this is going to hit me like a ton of bricks.... yay me :/
Hey acceptance is part of the process I need to get to that. Just can't grasp it.
Every three days? Man I wish I could have another injection before 3 weeks cause my pain is back fully and had two days without. I'm sorry this was confirmed. Im sure you, like me, wished it was something else. Hugs!
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Old 06-09-2015, 06:49 PM #2
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Hey acceptance is part of the process I need to get to that. Just can't grasp it.
Every three days? Man I wish I could have another injection before 3 weeks cause my pain is back fully and had two days without. I'm sorry this was confirmed. Im sure you, like me, wished it was something else. Hugs!
I would really encourage you to plan on having massages in between blocks that close together.
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Old 06-09-2015, 06:54 PM #3
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I would really encourage you to plan on having massages in between blocks that close together.
I had one the day of the block myself and it was wonderful! My pm wants me to continue to do that. Really gets the swelling down too! Highly recommend it!
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Old 06-09-2015, 08:14 PM #4
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The hard thing about figuring out what movements cause is pain is the need to stop doing EVERYTHING, get things calmed down and then slowly add activity back in one at a time. You have to be very methodical if there are a lot of possibilities. It also helps to add time increase in slowly. SOrt of like an elimination diet but for doing things.

This is how I figured out my saphenous neuritis which I feared was spread. I stopped everything and started up again about two weeks later. Turns out I was aggravating that nerve on the recumbent bike. My doctors couldn't figure out why my whole leg was buzzing. It was fluke that I figured it out because I had an injection in my foot and thought I should lay off everything and voila, the buzzing pain stopped. It had been going on for a year!
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Old 06-09-2015, 10:55 PM #5
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I have had about a 8 months of PT, and there does not seem to be anymore in my future... I had the surgery in Sept of last year and have been working on this since...

I luckily know what the triggers are for me, unfortunately, I do not have the use of my left arm to allow me to take it easy on my right arm, so I will constantly have flare ups. This is what I got into it with my ortho, before the block, I tried to explain to him, everything I do upsets the CRPS, because that arm has to be both left and right. Every time I go to bathroom, it has to reach around to pull my pants up, washing, shaving (luckily hair growth is less ), basically all my coping skills are triggers... ugh These have been honed for 41years, I do them without thinking, and pay a major price for it. The ortho now seems to get it... Why do they not just get it when you explain it, they have to have proof???

Thank you all, this forum is definitely a godsend!!!
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Old 06-10-2015, 10:13 AM #6
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Quote:
Originally Posted by scubaforsythe View Post
I have had about a 8 months of PT, and there does not seem to be anymore in my future... I had the surgery in Sept of last year and have been working on this since...

I luckily know what the triggers are for me, unfortunately, I do not have the use of my left arm to allow me to take it easy on my right arm, so I will constantly have flare ups. This is what I got into it with my ortho, before the block, I tried to explain to him, everything I do upsets the CRPS, because that arm has to be both left and right. Every time I go to bathroom, it has to reach around to pull my pants up, washing, shaving (luckily hair growth is less ), basically all my coping skills are triggers... ugh These have been honed for 41years, I do them without thinking, and pay a major price for it. The ortho now seems to get it... Why do they not just get it when you explain it, they have to have proof???

Thank you all, this forum is definitely a godsend!!!
It might mean you go for waxing, instead of shaving. And change the types of clothing and shoes you wear. Etc.
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Old 06-10-2015, 04:56 PM #7
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It might mean you go for waxing, instead of shaving. And change the types of clothing and shoes you wear. Etc.
hehe I mean under arm... waxing that would be
I look like a monkey when I shave and put on deodorant because I cant do it with my left hand, I have to do it with right...

Luckily, the hair isn't growing like my left side, so it is easier, so something nice out of this...

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