Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-25-2015, 06:25 PM #1
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default What should I Do?

I finally saw a pain specialist today. He increased the neurontin to 3x daily. I was so knackered after taking the extra dose I slept all afternoon.

He said he thought pamidrondate infusions would be a good idea for me, but could not give them to me.

Then who will? My PCP won't, the rheumatologist won't and neither will the endocrinologist. Who do I call? There must be someone in the big hospital who could help me.

The pain specialist would not give me Savella, until I reach the optimum dose of neurontin, which means a two week wait.

The packet of naltrexone pills arrived today, but I can't start LDN therapy until I figure out the neurontin.

The pain is so terrible. I am not sure how much more of this I can take.

The only good thing is I found that scotch tape helped to heal the deep sores on my CRPS leg in a week. It was amazing.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (06-25-2015)
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:48 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.