Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-30-2015, 09:42 PM #1
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Default Neuro & PM

Today I killed 2 birds with one very long day.

Neuro was first. We ended up going in the wrong building. Walked through the building, across the parking lot and into the right building. Whew!

Neurologist was thorough and straight forward. I appreciate that. I had copies of my EMG/NCS from a year ago. He reviewed them for a few minutes,taking notes. Did a neuro exam and decided on this:
a) The damage detected in the 2014 EMG is severe.
b) He needs to ascertain if the damage begins at the fibular head or below. So he wants to repeat the EMG. If it's at the fibular head, he thinks surgery. If it's below, he's sorry but there is nothing he can do and the damage is permanent
c) He might want to investigate if there is a nerve in my lumbar spine that is the cause.
d) He suggested the CRPS diagnosis. As he was reviewing my med history, the "RSD" diagnosis popped out at him and we joked about the RSD/CRPS thing. Nomenclature. Sheesh! He said he could do a scan to confirm diagnosis.

We stopped at the desk to schedule the EMG, which he stated he is booked out for those...Sept 2nd. Wow.

We had 4 hours to kill between appointments and with all the time I spent in the hospital with my son, emotions were already running on the yuck side so we sought out a Culver's. Then a Ross. Then headed back for PM.

We were a little early but I have to say I was very impressed with the minimal wait times, in the lobby and in the room. I was called back right away. Here's where things get interesting. PM doc was fairly aloof (whatever, most anesthesiologists are pompous). After discussing some med history and what my goals were (increased function/decreased pain), he decides "It's not CRPS. You can put a sock and shoe on, so it's not CRPS". But he will do a lumbar block as a diagnostic test to rule it out or confirm it. "But it's not." Okay. My block is scheduled for July 17th.

Oh! I almost forgot! In between the nurse and PM, I got a phone call from neuro...there was a cancellation....my EMG is tomorrow at 9:30!

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