Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-05-2015, 10:40 PM #1
happygirlpa happygirlpa is offline
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Heart happy early birthday!!

Leggiesmcb--- happy early 21!

I'm in the poconos area of PA and we've had soo much rain lately. I bet you've had it too. Rain rain go away come again another day...remember that nursery rhyme? This weather is so depressing.

Can you have an early birtyday celebration, before surgery? Pick some place special that you wont be able to go to for a while post-op. A nice picnic, visit a museum or zoo, river cruise, isnt there a dave n busters with cool arcade games? How about a make over day--new haircut, manicure, pedicure? I wouldnt worry about your weight. Once you feel better you can tackle that later. Do you have a pet? I am so thankful for my cat and dog. They make me smile and keep me company. I wish you well and will be sending prayers your way
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Old 07-06-2015, 09:40 AM #2
RSD ME RSD ME is offline
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hi leggies. i will pray that your second trial scs is successful and that you have a happy birthday. as i read your post i felt everything your feeling and completely understand how hard it is to live each day with rsd along with other health issues. though i have not tried the trial scs (as of yet) i am on a lot of meds to help manage my constant rsd pain and depression. i hope that you know that you are not alone because there are so many awesome people on this forum who make dealing with rsd a little easier and a lot less lonely. sending many soft hugs your way.
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Old 07-07-2015, 10:24 PM #3
GreyStreet GreyStreet is offline
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Hi leggies. I know how you feel. I contracted RSD at 23, diagnosed a few years later. It doesn't matterr much if things could be worse when you're feeling depressed. Just know that the depression can pass, and it often does. I have had this terrible disease for 20 years, and sometimes the pain is too much to bear, then just when you think you can't make it another day, it subsides a bit.

Know that you aren't alone, we know how you feel. Find something you enjoy to help keep your mind off of the pain, even if it's just for a short time. It's possible to feel better, even if you don't get remission. You just need to find the treatment that works for you. I'll keep a good thought for you.
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Old 07-08-2015, 12:11 AM #4
Always_Believe Always_Believe is offline
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Leggies,

Vent away. Gloomy. Happy. Mad. Sad. Hurting. Every day I go through all of those emotions solely related to the pain and the loss of all the things I once built my life around. Any debilitating disease brings with it grief. The 5 stages of grief are not like Maslow's Hierarchy. Each stage is experienced at various times in various degrees. We don't complete one stage and move into the next. Stages are repeated over and over. There is no 'true' end of grief, only different levels of acceptance. Which then of course leads way to another level of denial. Circles.

21st is a big one. I'm sorry yours is faced with alterations to the 'norm'. Perhaps your friends can bring the celebration to you...provided there is no contradiction with any medication. When my 2nd son would have celebrated his 21st, I was living in TN and could not make it up to IL. My close friend and my parents went to his gravesite and called me from there. We sang Happy Birthday and each of us did a shot for him. My friend buried the empty airplane-sized bottle of tequila near his marker.

I am struggling with finding a balance with this CRPS myself, so I don't have any words of wisdom for you, except that you are not alone.


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Last edited by Always_Believe; 07-08-2015 at 08:41 AM. Reason: I got bleeped
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Old 07-08-2015, 05:30 AM #5
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that was beautifully said greystreet and alwaysbelieve. just have to take it one day at a time and know you're not alone leggie. and alwaysbelieve, i am so sorry for your loss. soft hugs to all.
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