Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-07-2015, 10:11 PM #9
GreyStreet GreyStreet is offline
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Join Date: Jun 2015
Posts: 18
8 yr Member
GreyStreet GreyStreet is offline
Junior Member
 
Join Date: Jun 2015
Posts: 18
8 yr Member
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Quote:
Originally Posted by BioBased View Post
You are right, they do not listen! Like you I told multiple medicos about my symptoms, the burning pain that prevented me from sleeping-that required constant icing, the feeling that I was walking on broken bones, the pain moving, that a tiny, hard crumb felt like a boulder and could throw my balance off. I screamed when I took a shower. None of this is in the notes. Not one word. It is as if they,as group, decided that what I reported to them was of no value.

I begged for pain help repeatedly, but got nothing, worse I was treated like a drug addict and I believe there is a hidden report written at the beginning of this misery saying I am a drug seeker. I am 65 years old with no history of drug use. I don't smoke or drink either. It boggles my mind that not one of the doctors I saw, did not think it was odd, based on my history, that I was in extraordinary pain begging for relief.

Today I am mixing up my first batch of low dose naltrexone, with naltrexone pills. It is hard for me to believe I live in the USA, pay privately for healthcare and in order to get relief I have to buy a drug and mix it myself. If I want medical marijauna I have to pay a private MJ doctor $260, register with the state $50 and then go to the only dispensary in the state which is miles away from where I live so I can spend another $300 or so to get pain relief. There is something so wrong with this! But I have no other choice.


Meds: Neurontin :400mgs 3x a day.
It's a crying shame you need to go through mixing your own meds. We shouldn't be suffering like this, begging for medical care, understanding, and medicine. I am absolutely disgusted.

Please be careful. I wish you luck.
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BioBased (07-08-2015)
 


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