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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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"up Date... scared, kinda"...

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Old 06-21-2007, 04:34 PM #1
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Default "up Date... scared, kinda"...
Hi all! ok, I went to the hand/ wrist specialist. What a wonderful fun loving down to "Earth guy" he is!! anyway, I was hoping deep inside, that he would say, I don't have RSD! Friends, he held both of my hands, wrists. touched them, felt the ice cold right hand.. came out and VERY BLUNTLY said:"Your shot"! It has spread to my upper shoulder . He wants to send me to a new pain specialist that he said is good. He wants to paralze my entire hand, wrist arm and shoulder. He said he will do this as long as it takes to keep the nerves inline. by him doing this procedure, he said the nerves can "rest("Sleep") wow! hope!!!! He said his last procedure would be surgery to fuse my nerves, ligaments, blood flow.. is to fuse them(He said it's done something like when you fuse a stero wire together) I am excited and scared at the same time. Well, this is my story for today. Thanks for reading this far.. LOL Love, Desi oh, P.S. I meet with the pain Dr. June 26th. It took me around 2 months to see the Dr. I went to today. It was worth the "wait"!
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Old 06-21-2007, 04:54 PM #2
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Hugs, keep us informed.
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CHRISTINE
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I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
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Old 06-21-2007, 05:25 PM #3
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Default Desi
It was so good to read that your new Dr. not only knew what you had, but offered some ideas as what may help and that he has a personality who could ask for anything more--besides a cure!!! Take Care Carose
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Old 06-21-2007, 11:17 PM #4
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Default Hi Desi,
I had a great hand/wrist specialist that knew exactly what I had and helped me get the help I needed for the RSD. He retired but I will never forget how good that guy was. I think some other types of Drs. are more up on RSD then a lot of PM Drs. The hand Dr. I have now is the same way. He is very up on RSD.

I am glad you found a Dr. that is up on it enough to at least get it diagnosed and where it's all at and get you the help you need. I sure hope it all goes good for you.

Ada
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Old 06-22-2007, 06:02 PM #5
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Thank you Christine. I will let you all know how all go's after my right wrist, hand.. heck, my whole arm being paralized (I am actually looking forward to this, this Tues.) No pain for 15- 20 hrs. then more blocks! YEA.. I hate my boo-boos thanks again, Christine Love, Desi

Hey ya Carose, Yes, that specialist takes us RSD Patients so serious! he is just "Great"! It's like he really, really cares, understands what we are going through with this "beast" Thanks again, my friend, Carose Love, Desi

Hi ya Ada! I am so happy that you had a "Great" hand & wrist specialist on your side!! Thanks for the lovely reply Ada! love, Desi
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Old 06-22-2007, 08:04 PM #6
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Desi,
No pain for 15 to 20 hours... It's Awesome that you have found a Dr that is taking this so seriously...
Sending you "" Vibes...

Dawn
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Old 06-22-2007, 08:33 PM #7
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good luck to you desi. no pain for that long sounds so good. i'll be thinking about you.
love sue k.
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Old 06-23-2007, 01:03 AM #8
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Hi ya Dawn! yes!! No freekin' pain for many hours, as this pain is getting worse, I am looking forward to Tuesday! Am I scared?/ well, ya.. a little.. hehehe Thank you so much for your Holy Sheep little guy.. that really had me crackin' up! Your a good friend, Dawn! Love ya Lady! Love, Desi


Hey Sue! How are ya doing these days?? good I hope!! Thank you so very much for the kind reply,, and a huge "Yes".. No pain for around what?? 15, maybe 20 hrs?? I sure hope I go in there feelin' not a scardy cat.. LOL Love ya Lady! Love, Desi
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