Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-18-2015, 10:12 PM #5
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
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Quote:
Originally Posted by RSD ME View Post
hi again always. hope you have a better nite tonite and can get some sleep. i'm sending comforting vibes your way. take care.
Thank you. This has been a physically and emotionally exhausting past 10 days. In addition to all the doctor biznotch (neuro/emg/3 phase scan/endocrinology/blood tests/PM), pain up and down with some major swelling and multiple times being unable to stand, getting ready for a visit from my son, d-i-l & grands, finishing up major home repairs, we have also had some horrible weather. Today a tornado touched down within blocks of my house.

I was feeling like there was something to grab onto until my PM appointment. I think the most discouraging aspect is that he wants to do a few LSB's and then a SCS. Insurance denied the LSB and yet no alternative was offered. Scratch that...cymbalta. I know this will come out as totally vain but my 5'1" body cannot handle any more than the 50 lbs these stupid meds that haven't done squat have already put on. I also cannot financially afford to buy any more clothes! So I am concerned about the cymbalta. I am also frustrated that no one seems to think about the breakthrough pain even IF the cymbalta does anything.

Dang...there I go again. I started a blog about self-advocating, hoping I will get a handle on that myself. I also have begun compiling some exercises that those unable to weight bear can do as well as lowered calorie meal plans.

I appreciate you all so much! It means so much to be able to share & know I am not alone.
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Littlepaw (07-19-2015), RSD ME (07-18-2015)
 


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