Welcome Hummerfriend,

It sounds like you have certainly found things that are moving your recovery forward! Congrats on that, it takes a lot of trial and error. I agree that a positive attitude and slow, deliberate, incremental exercise make a huge contribution to improving ones life with this disease.

You were fortunate to have an injury that did not require surgery or hardware. That certainly adds a layer of complexity and things are never quite the same even after the most beautifully executed procedure. I think it is easier for the body to get back on track without those challenges. Even with them it is still possible to make tremendous progress.

Your medication regime is extremely progressive and I am curious how this came about. Many of us have had difficulty finding someone to prescribe LDN and you are the first poster I have seen write anything about Dibenzyline (phenoxybezamine). I was very surprised by this. It is recommended by Dr. Stanton-hicks of Cleveland Clinic but is almost impossible to get. There is no generic currently in the states and I found brand priced at upwards of $3000.00! This non-competitive alpha blocker helps calm injured nerves because once nerves are injured they sprout extra adreno receptors which makes them more hypersensitive and reactive to temperature etc. Studies on it are quite good. I ended up ordering some from overseas but have not taken it. It is in my back pocket so to speak.

How on earth did you find a PM who prescribed these meds? Are you in the US or elsewhere? Wow is all I can say, you lucked out!

Keep up the good work on your recovery! With your youth, ongoing work and surprisingly different medical care you are sure to beat this thing.

i'm so glad you are doing better with your rsd. i've read several posts about people recovering from rsd today and am so happy that there are people with rsd who are feeling better. i've learned alot about rsd throughout the five years i've had it between living through its pain and learning about it from people on this forum and drs websites. from what i've learned is rsd is not cureable yet, but it can go into remission. that doesn't mean they are cured because rsd can come back again. hopefully someday a cure will be found.
i also believe that a positive outlook is also important, but rsd is not an illness of the subconscious. it is a physical illness and though being positive is important the need for medication sometimes from a dr is also necessary for some people in helping to manage the constant horrific pain that rsd causes them. i do hope that all of you who feel you are cured stay that way. and i hope that all of you who think that the subconcious can help cure rsd have it really happen.
i just wanted to express my opinion on the difference between being in remission and being cured,and the difference between subconscious (mental) illness and physical illnesses. i value and respect all of your input and think we all learn something from each others experiences.
i don't mean to be a downer but after living with illness for five years and going through alot of horrific surgeries and pain, i felt i need to express the realities of my version of rsd. that's not to say thats how everyone else will experience it, it's just my experience with it.
i hope you keep feeling better every day. i hope we all do. and i hope most of all a cure will be found for this incredibly constantly painful and still so misunderstood physical disorder of the sympathetic nervous system.
soft hugs and warm thoughts to all.
__________________

http://www.hindawi.com/journals/arp/2013/978615/

Info about dibenzyline


http://www.prasco.com/index.php/pras...f-dibenzyline/

This link indicates that there is a generic here

Thanks BB,

I looked into this early this year and just re-checked the Prasco website. There is licensure for dibenzyline generic but no production yet, so far as I can tell. Multiple phone calls failed to locate it back around Feb-March and the Prasco site does not have it listed today as a product under any category or name. Only the "announcement".

I was interested in the oral sympathetic block because I am just personally leery of doing LSB. It would be nice if this drug was available to us at a reasonable price. It is an old drug and no reason to be sky high except that it is used infrequently, mostly in hospital settings for total, irreversible alpha block before procedures for a super rare condition.

I wonder what halted production.