Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-20-2015, 08:53 PM #3
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Jennijojo Jennijojo is offline
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Join Date: Mar 2015
Location: Western Washington
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Jennijojo Jennijojo is offline
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Join Date: Mar 2015
Location: Western Washington
Posts: 95
10 yr Member
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Quote:
Originally Posted by Littlepaw View Post
Hi Jennijojo,

Good to hear from you. I am so sorry to hear that repeat blocks didn't bring relief. Keep pushing on the MRI, I am so hoping it gives you some answers. I think still treating the CRPS throughout is the right thing to do. Even in cases with complete removal of the pain contributor it is important to still treat the nervous system, keep things calm and keep up the gentle motion until things settle. I am glad the taping is helping. It sounds like your OT is on board with realizing something is wrong in there and in need of attention.

Keep hanging on! I know how hard it can be when you just hit the point of being exhausted. After my third operation I really got close to giving up and had to make a conscious decision to get through every day. It's really difficult when you are waiting for information and not sure what direction treatment is going to go but you will get through this. Go out and love on the horse, hug the kids, watch a sunset, have a nice cup of tea with cookies...be kind to yourself and have a cry if you need one.

Sending hugs and Healing Love,
Thanks littlepaw good stuff to hear! I really can't give up as much as I would like to. I gotta put on a good face for everyone else. I think I'm just feeling discouraged esp since I had hoped for so much more from these injections. And also intense pain really wears on you.
And maybe a little too much steroid lol
Dieting and having the weight come right back (I blame the gaba) and the. Work super hard again to lose and it's just all so discouraging. I NEED A MAGIC BUTTON lol!
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