Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-31-2015, 11:58 PM #1
Leggiesmcb Leggiesmcb is offline
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So sorry to hear you are having such an unfriendly day/week. I will pray for you to stay positive,get good rest,and reduction in pain. You are mot being a debbie downer- we are here for these days . To support one another in pain.

I too, have had really bad stomach cramps/ache not sure what is up, but mine left me laying on the couch unable to move yesterday. I hope we will both shake this off soon.

Keep staying strong, I know you can do it!

you are in my thoughts and prayers RSD ME!!

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Old 08-01-2015, 09:16 AM #2
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I hate these days. I had one yesterday, all day headache, nausea, burning limbs. Lots of moaning and cursing with ice packs on my head. An altogether wasted day, with not one bloody thing accomplished.

How are you feeling today?
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Old 08-01-2015, 10:08 AM #3
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thanks so much to all of you for all of your kind and caring thoughts. it made me feel so much better to have all of you to help me through my rsd flare. i slept a little last night and feel a little better today. i'm still a bit nauseas and dizzy but my rsd flare and headache have subsided a bit so that is good. i still have my rsd pain but it is more bearable today then yesterday thank goodness. i hope you all have a painfree as possible day today. and i hope that all of you who were also having a bad pain day yesterday are feeling better today too. you are truly good friends and are like family to me and i couldn't have gotten through my flare without you. thank you again.
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Old 08-02-2015, 09:30 PM #4
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I hope you are feeling better. Sounds like a few of us had a rough weekend. Those flare ups can be so discouraging. You are in my thoughts & hope your week has a better start!
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Old 08-03-2015, 11:02 AM #5
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thanks everyone for your kindness. i am feeling a little better but am going to gp today to see if he can check my heart. i've had some trouble breathing during my last flare and want an ekg done just to make sure my ticker is working right. i'm sort of scared because i also have a skin infection on my head and neck that my pm dr said was from rsd and it burns so much so i am going to see if my gp can give me an antibiotic for it. i am really nervous about going to the dr but i know i have to go. i hope everyone else is feeling better today too and that your flares have subsided. i wish you all a pain free as possible week. thank you all again for caring so much!
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Old 08-03-2015, 11:37 AM #6
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If you don't get the skin thing cleared up you may want to see dermatology. I had a rash one doc thought was just neurogenic CRPS stuff but it came up suddenly so I knew otherwise. Then a couple docs saw it because I had follow ups scheduled and thought it was shingles (on my CRPS foot). I finally went to dermatology when it didn't clear, she did a biopsy because it just looked weird and of all things I had athletes foot on the top of the foot in an atypical presentation. It wasn't CRPS at all. Crazy! Maybe our CRPS limbs are just more susceptible to other stuff.
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Old 08-03-2015, 09:50 PM #7
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thanks littlepaw! my dr thinks i have some kind of skin infection and prescribed a medicated ointment that i am to use every nite and a prescription shampoo which i have to use every other day until the infection clears. he thinks its an infection and that may have been caused by rsd but is not sure. either way he said to try the prescriptions first before the more invasive nerveblocks and i am ok with that too. my ekg was also done but i didn't get results back yet. will get a call by tomorrow. hopefully that will be nothing but stress. thanks again for your great advice. i really appreciate it. i had thought of shingles but he said no. thank goodness for that! hope you all have a good nite. i am glad i don't have anything serious on my head so i think i will sleep better just because i am so relieved. soft hugs to all.
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