Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-01-2015, 07:17 PM #2
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
10 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
10 yr Member
Default

Hi Leggies,

You have been through so much lately. It gets so tedious going to doctors and trying things only to have them not work as hoped. I am sorry your stimulator trial didn't go better. It must have been very frustrating about the leads.

It sounds like they are thinking to refer you for Calmare. I could be wrong on this but Mayo did a study on Calmare "scrambler therapy" for neuropathic pain. They got good results but it was a small study. As with everything, results vary. I don't think it can be used when CRPS is full body. There is a current thread just a few down on the page about Calmare. You may want to check if that is what your doc meant. Do your research and make sure you get an MD experienced with CRPS if you go ahead. I think there may be other practitioners beside MD using these. IMHO Since you are "special" I would go with the person with the most overall training and not a chiro or something.

I hope someone can hop in with an answer on the SCS. There is an SCS sticky thread under the "medications and treatments" section.

Thanks for letting us know how the trial went. Keep up the fight and keep trying new things, you never know when the healing is going to kick in. I am sending hugs and healing love,
__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (08-02-2015), Leggiesmcb (08-04-2015), RSD ME (08-01-2015)
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Surgical, Injections or Conservative: Unsuccessful only please dawn3063 Thoracic Outlet Syndrome 8 02-27-2011 02:46 PM
Has anyone had repeated beir blocks when unsuccessful? Imahotep Reflex Sympathetic Dystrophy (RSD and CRPS) 6 08-18-2009 12:15 AM
Surgical, Injections or Conservative: Successful or Unsuccessful dawn3063 Thoracic Outlet Syndrome 3 12-12-2006 02:21 PM
Unsuccessful autologous stem cell transplantation (ECTRIMS) xo++ Multiple Sclerosis 7 09-30-2006 07:50 PM


All times are GMT -5. The time now is 06:44 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.