Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-04-2015, 04:48 AM #6
Leggiesmcb Leggiesmcb is offline
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Join Date: Jun 2015
Location: Phoenix, Arizona
Posts: 18
8 yr Member
Leggiesmcb Leggiesmcb is offline
Junior Member
 
Join Date: Jun 2015
Location: Phoenix, Arizona
Posts: 18
8 yr Member
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Quote:
Originally Posted by Littlepaw View Post
Hi Leggies,

You have been through so much lately. It gets so tedious going to doctors and trying things only to have them not work as hoped. I am sorry your stimulator trial didn't go better. It must have been very frustrating about the leads.

It sounds like they are thinking to refer you for Calmare. I could be wrong on this but Mayo did a study on Calmare "scrambler therapy" for neuropathic pain. They got good results but it was a small study. As with everything, results vary. I don't think it can be used when CRPS is full body. There is a current thread just a few down on the page about Calmare. You may want to check if that is what your doc meant. Do your research and make sure you get an MD experienced with CRPS if you go ahead. I think there may be other practitioners beside MD using these. IMHO Since you are "special" I would go with the person with the most overall training and not a chiro or something.

I hope someone can hop in with an answer on the SCS. There is an SCS sticky thread under the "medications and treatments" section.

Thanks for letting us know how the trial went. Keep up the fight and keep trying new things, you never know when the healing is going to kick in. I am sending hugs and healing love,

Thank you for all your encouraging words and for ALWAYS replying to mine and others threads. You are incredible. I will most certainly research more of the scrsmble. You know I did read the post yesterday and it didn't seem to me that Calmare didn't have such great results. Have you used calmare?

Also about the "sticky " posts, I don't understand what they are and how I would get involved with ghem. Any chance you could clue ke in? That would be a great help if you don't mind!

I can't tell you enough what a help you are. Thank you for devoting your time to keep us all informed/encouraged. You are in my prayers. Best wishes to you!
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Littlepaw (08-04-2015), RSD ME (08-04-2015)
 

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