Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-23-2007, 03:12 PM #1
sue k sue k is offline
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Default 2nd bad day. don't want to do this anymore

i've had it. i just can't live like this anymore. i just want to feel good for one day. i know we are good people. your all so kind, why did this happen to us?
are we being punished for something? i don't mean to feel sorry for myself, i just don't know what to do. everyone here just can't understand how i feel. they think i should just be able to do everything. no one helps. all i ever here is"go to bed". I'am sick of bed. sorry, just had to vent. you guys are the best.

love sue k.
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Old 06-23-2007, 08:26 PM #2
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Hi Sue! Sounds like you need to call me hun! I am going to PM you now and give you my phone no. PLEASE REVERSE the charges, as I have unlimuted long distance on my telephone no. I will be waiting for your call, Love, Desi
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Old 06-23-2007, 10:33 PM #3
Linmarie Linmarie is offline
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Hi Sue,
Next to the pain, the worst thing for me is what I can't do anymore. It is so depressing to think about what I can't do & wish I could. I, too, wish for a good day. It sounds like you don't have much support. I really feel for you because I know that makes it worse.
No, we are not being punished. When I first got RSD, I used to wonder what I ever did that was so bad that I deserved this. I don't know why we get RSD.
I hope you are feeling better. I want to say "hang in there" and hopefully tomorrow will be a better day. I wish I could say more to help you.
Linmarie
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Old 06-23-2007, 10:44 PM #4
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Sorry to here about your pain. I do understand. Iwill pray for you . Rashelle
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Old 06-23-2007, 11:50 PM #5
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I am sorry you are suffering so much. I know that pain. When treatments didn't help, medications didn't help and I'd suffered for over 5 years, I got the intrathecal pump My biggest question was why did I wait so long to get it ?

I never gave it a thought that I was being punished. I did, however, realize that I may never know in my lifetime why it happened to me. It was easier to accept it than fight it. The hardest for me was losing my career
I hope you get some relief soon and also will keep you in prayer.
Hope
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Old 06-24-2007, 07:26 AM #6
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Sue,
I wish I knew the words to make it right. Just know that we are all here for you and we are all in the same boat. If you need to vent, cry, or scream you can do that with us. we will not judge you, just listen and give you gentle hugs.
Mary
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Old 06-24-2007, 12:38 PM #7
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We aren't being punished, we are simply the few who can be tested and survive. We keep on going in the face of adversity and yes, we get depressed, mad as heck and want to give up BUT we don't. We are special.

Hang in there.
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