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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Magnate
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Yesterday here in Colorado it was 100 degrees. The humidity was right up there with it, I believe. When I went for a walk everyone was talking about the heat and humidity.
I know I was sweating though ten times more then any of them. Sweat just ran off of my back all day long. I tried to redo some things in my house and had to give it up. Even with it being cool in here I was still sweating and worse outside. I asked my Dr. about the Clonidene and he says he'd rather not due to the side effects. He says it causes all of the problems I already have so he's afraid it will make them worse. Is there another med out there that will do the same without all of the side effects? This new Immunologist is trying to check out my immune system. Explain this too me, is it the immune system that adds to us getting the RSD and Fibro or the Autoimmune or both? I'm anxious to find out what he comes up with. I am off this morning to have my blood work done and a chest xray. My Dr. is also lining up my sleep study also. Finally this Dr. maybe able to help figure out what I am dealing with. My PCP and I both believe that I have not been diagnosed completely. Back to the heat. I know a lot of you are seeing a lot of the sweating. Does it get to you as bad as it gets to me. I sleep with a fan on at night but I have to keep a cover over me so the air won't get the RSD acting up. I cannot find anything to help me. I do walk around here with a wet washcloth on my neck to try and help. Do you have any good solutions besides the Clonedine? Do you ever get past the sweating with the RSD. I notice some symptoms calm down but the sweating doesn't. Even in the wintertime I have to sleep with a fan. Thanks for the help. Ada |
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#2 | ||
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Member
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the humidity kills me. i can no longer handle the heat, and the humidity causes my feet to swell to the high pain stage. i have yet to find a solution. i also use a fan or the AC to keep cool, and yet have to have a sheet to protect the rsd areas which are freezing! oh boy, i need a new thermostat!
joan
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Courage ... doesn't always roar, sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." |
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#3 | |||
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Junior Member
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First of all, I try to stay out of the sun. I cut out almost all caffeine after 10 AM and eat lite meals and drink lots and lots of water. Food that is difficult or slow to digest is a no no.
Our walks are mainly from 6am to 6:30 am. I try to wear lightweight cotton rather than synthetics, and make sure it's loose fitting. Wear a cap or hat that covers the top of your head yet allows air movement. You lose heat through the top of your head so you don't want to trap that heat in, yet you want to cover it because you don't want the sun shining there and heating things up even more. During the day while inside the house I use a lot of "window management". Too much in and out of the air conditioning is really hard on me and will trigger a migraine. Don't want one of those, so... if the sun is shining in, or about to the window gets shut and the curtains drawn. Then as the day progresses you open the windows when the sun no longer shines through and close the ones that do. Sometimes a fan blowing the warm air out of the house keeps things cooler. Use ceiling fans to recirculate the air in the room you are using. If you have to cook, use the microwave and/or toaster oven rather than the regular oven. The cold wet washcloths help a lot, and keeping my hair off my neck makes a big difference. I haven't turned the air on yet. Usually don't have to until mid July when the temps get above 95 and it doesn't cool off at night. I hope some part of this helps. Hugs and Prayers
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. pass the bubble wrap please . |
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#4 | ||
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Member
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I sweat profusely. I always had an issue with sweating before RSD, however, it is now 10x worse.
I take cymbalta, vicodin, & zanaflex. We installed a window AC (definitely cheaper than central air.) I keep my big heavy blanket on my leg, but not touching my knee, and the AC on cold. If I don't then I am a wet blanket all the time. I am going to be talking to my doc about this as it bugs the crap out of me.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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#5 | |||
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Member
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[COLOR="Blue"]I have central air.. no sweating. I have never been one to sweat except in the sun or when it is so humid, I can't stand it. Now, it is in the upper 80's here and I love it because my hand doesn't get as cold. when it gets too cold in our home from the air, I have a ice cold hand and have to turn off the air. weird!!
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#6 | ||
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Junior Member
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I am back in Iowa from AZ now, and have continued my walking each day. Now here in Iowa the humidity is about 60%, in AZ about 4% when I was there for 6-7 weeks. My whole body is a river of sweat. My pants look like I walked out of a pool. My feet have become swollen since I am back home and my second toe under the toenail has turned a bright redish-purple and is very painful..along with the burning on my top 3 toes on my right foot..I wear crocs when I am not on the walking path and it seems to help a bit...the dry heat even though 112F is much better than 85F with 60% humidity..everyone have a safe holiday!
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#7 | |||
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Magnate
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I agree about the humidity. Colorado is a lot like Arizona with the humidity. Usually it will only get up to 10 at the most. But we have had an unusual summer and it has been raining a lot. We have had rain again now for 4 days straight and along with it comes the humidity. It makes me swell and hurt so much worse. When we don't have the high humidity, I love it here.
Ada |
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