Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-04-2015, 08:44 PM #16
tigerlily7777 tigerlily7777 is offline
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Join Date: Jun 2015
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tigerlily7777 tigerlily7777 is offline
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Join Date: Jun 2015
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Quote:
Originally Posted by cdwall View Post
I remember Littlepaw (I think it was) using a really good phrase about dealing with this disease. It was something to the effect of, balance acceptance with fight.

I've had RSD now for over 2.5 years. It took nine months to get diagnosed so I've spent about two years trying to wrap my mind around this crazy disease and researching treatment options. I feel like have plenty of fight but I'm running low on the acceptance part. As long as I have some new treatment around the bend, I have trouble not thinking it's my magic bullet to make this nightmare go away. I can say it to myself a million times, and I'm in therapy. But I can't make it real on all levels.

What are your stories of acceptance or non acceptance?

Denise
I have found that acceptance does bring serenity. I have also found that it has to be done one day at a time. I do still fight against it at times, like when I have been doing great and then over due it. It can be discouraging to be back to constant pain, where nothing I do helps. I have to remember it is only a set back, and I have experience now in how to help myself through it. I know I need to work WITH myself. I am learning how to balance rest and work, or walking, or living hahaha. Do a little then go and rest on the bed, breathe deeply, do my best to relax, read something to take my mind off of the pain. There is a lot of stress in my life right now that I can not change. How I respond to that stress I can change, one day at a time. Getting upset makes the pain unbearable. I see acceptance as embracing in order to look for solutions to problems. Acceptance changes the focus, from the problem to the solution. I want to be open. Acceptance changes ME, my attitude, my perspective.
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