Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-31-2015, 07:15 AM #1
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If you don't make progress in the coming weeks, be sure they do adequate work up to rule out any surgical mishaps. I wonder about the numbness you describe. Could that be CRPS, nerves pressed on by post op swelling or a nerve that got nicked or smooshed by scar tissue etc.? it is important to find and address any pain contributors so you can heal whether this is CRPS or ticked off foot. Morphine at 8 weeks out sounds heavy to me for any remotely typical healing spectrum. Obviously your foot hurts like hell for whatever reason.
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Old 08-31-2015, 10:39 AM #2
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I am very thankful for all of yall responses. My ortho sent me to pain management because he says I should not be in this much pain eight weeks out following this surgery. Also I forgot to mention he said that it took him twice as long to do the surgery because a nerve was in the way. He was hoping that he did not hurt the nerve in any way but he thinks he did that's why he sent me to have a nerve block done.
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Old 08-31-2015, 04:17 PM #3
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Poop. I am sorry to hear it. I sadly know too much about nerve injury from ortho procedures.

Nerves can handle being stretched and tugged on during procedures. If he just had to gently move it out of the way the nerve should tolerate that but maybe be ticked off. What nerves can't handle is being scarred down, cut/torn or worse yet, partially cut/torn. Mine partially tore from a retractor which is pretty extreme.

If you are in or near a major metropolitan area, and I mean MAJOR, Austin at 850k people didn't have the specialists for what I am proposing and I had to go to Houston. If you don't get better and your doc thinks he damaged the nerve it is possible to get a peripheral nerve ultrasound by a Physical Medicine and rehab specialist with ultrasound certifications. These guys can visualize nerves that can't be seen on MRI, Especially something major like you are probably talking about (Sural or superficial peroneal depending on where they went in). They can look at it and tell if it was transected, has a neuroma or is just scarred down. They can treat scarring with a hydrodissection.

hopefully it won't come to this and you will get all better soon. But if you don't , this is a little known imaging and potential treatment option to address nerve injury.
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Old 09-01-2015, 07:02 AM #4
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Default Good morning. UPDATE

I went to a different pain dr yesterday for a second opinion. This was such an extreme difference from the last dr. This dr was in the room with me explaining and showing me things that the other dr didn't. By the way the first dr walked in looked at my foot and said you have CRPS "I'm not going to explain it just google it". I was like wow really? After thinking about it if I did let him do the nerve block would he have to google it? Needless to say I fired him
So the new dr explained and showed me that I have all four symptoms. With one of them being minor which is good. But I do have discoloration, temperature difference and I forgot the last one lol. The one where it is painful to touch is only in a small part of my foot but extremely painful to walk.
He gave me a choice to try intense physical therapy for four weeks or nerve block. I chose the physical therapy and we will see what happens there. He wants me to move my foot more and walk more without crutches. He also said that the liryca the other dr gave me was not enough so he upped that. He then gave me quick release morphine to take as needed along with the extended release morphine twice daily.
The the nice person who asked about me living in a rural area. I am in Louisiana in between New Orleans and Baton Rouge so I am seeing a dr in Baton Rouge
Thanks again everyone for all of your input. I look forward to hearing from yall more. I will let yall know how pt goes. My appointment is tomorrow
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Old 09-01-2015, 10:57 AM #5
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Hi Juliek~I'm a new member too and just wanted to say hello. Glad you found a pm doc that you like. I have an appt. with a new one on 9/8. My first one seemed to only do procedures (nerve blocks, did 3; SCS no way right now.) I want someone that will discuss other options. I am in PT since June (pool and land) and I wish you as much success with it as I have had. Not easy, but I'm so much stronger now. Good luck!
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Old 09-01-2015, 04:28 PM #6
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Yeah for the new doctor. I am so glad you exercised your right to choose a better provider. I think your plan is a sound one. If after the PT you still have a lot of "ick" where that burning sensation was, you might consider a local block with steroid before going for the spinal nerve blocks. Sometimes peripheral treatment does the trick.
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Old 09-03-2015, 05:11 PM #7
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I started pt yesterday and it was rough but I did it. Today I was very soar so I just laid around. I also am going back to work tomorrow night. So please pray I survive.
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Old 09-21-2015, 06:17 PM #8
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I would second what little paw said one foot surgery. I have 2 and they have taken me double and triple the time it would take to heal. My first one had screw and staple in second was to take it out. After first I had many of the cross symptoms but turned out I didn't have it just my body's reaction to healing.

Maybe ask for nerve conduct studies emg to check for nerve damage. Good luck in your search for answers.
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Old 09-21-2015, 09:17 PM #9
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They nerve blocks do not take long to get over. Mine varied with each shot, but basically one to three days of being fairly sore at the injection site. I am asssuming from the description of your injury that it will be lumbar sympathetic blocks, the sorness is on the on the same side as the CRPS foot in the lower back. Not a huge deal compared to the CRPS.
~mac
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