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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Therefore to answer your question, yes, it is very common to grow more and more sensitive to the touch. It is part of the disease In My Opinion.
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | Enna70 (09-22-2015) |
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As -Spike- said, your PT shouldn't have any reason to be touching your foot. The only reason is if they are familiar with CRPS/RSD and are careful about doing gentle massage techniques, watching your response as they perform them so they know when and where they can not touch.
As for medication, I am taking the standard gabapentin that many of us take, 600 mg 3 times a day which is still a relatively low dose for us, 50 mg amitriptyline at night, which is similar to what Littlepaw is taking, and hydrocodone 10/325 as needed. The one that I think has done the most for me is the amitriptyline. I have heard many others talk about low dose neltrexone as well but I read somewhere that the system needs to be completely clear of narcotics which includes morphine and hydrocodone. Since I am still fairly new at this, I am interested in what others have to say as well. |
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"Thanks for this!" says: | Enna70 (09-22-2015) |
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Thanks again yall. I did ask my pt about his experience with CRPS. He said he has had a couple but I'm starting to wander. But I like him and he's conveniently located. But I think yall are right about finding a new pt. I am also on gabapantin 300 mg 3xs a day
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"Thanks for this!" says: | PurpleFoot721 (09-23-2015) |
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#4 | |||
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Those that have an in depth understanding of the disease and how to treat it with Physical therapy would more than likely (In My Opinion) answer that question by saying, "I would tell them to immediately begin to desensitize the area." IMO that Physical Therapist knows his / or her trade in regard to helping CRPS patients. That is the physical therapist that I would recommend CRPS patients to seek out! That person knows their business and how to help people like us IMO.
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | PurpleFoot721 (09-23-2015) |
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