Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-11-2015, 03:43 PM #1
Enna70 Enna70 is offline
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Quote:
Originally Posted by Theodora View Post
Also interesting about your temperature observation. I sleep much better when it is freezing and I have blankets. Maybe I'll have to set the AC really high and see if I can sleep?
Yes this is true in part for me too.......fan on high and warm blanket. But then when I get the turnic feeling I end up ripping everything off.
I dunno what else it can effect. I recently learned tics are common. Thanks bio.....this is weird cuz mine started w the medication. Or was it due. One of my bones just broke and my molars have dissoved.....have you experienced any 'weird'/other symptoms?
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Old 09-11-2015, 06:44 PM #2
BioBased BioBased is offline
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Theo,

I was sleeping in spurts day and night. No position was truly comfortable, but I would get exhausted enough to fall into a coma like sleep throughout the day from which I could not be awakened.

I used a folding stool to keep the covers off my feet. It also forced my feet to stay upright, because they were trapped under the stool. I know it sounds weird, but it helped with the pain.

Neurotin also helped. I was often awakened in the night by jabbing electrical pain, as if there was a thunder storm in my legs and feet. I recall lots of screaming. (I experienced this the other night for the first time in a long time and it was short, but still horrible) I have giant allover body spasms and big twitches when I am falling asleep.

Heating pads helped me calm down my legs. If my RSD leg got too cold I could not sleep and I would moan and groan. I put the heating pad next to my feet under the stool. I know taking a heating pad to bed is not recommended, but I did not know what else to do.

If my husband couldn't massage the bottoms of my feet I used an infared massager. I still do. I think it helps.

I cannot abide the sound of an air conditioner or a fan, but I know I sleep better when there is a breeze.

Like Enna I sleep warm, even in the summer.
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