Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 09-13-2015, 06:24 PM #1
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
10 yr Member
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
10 yr Member
Default

This is interesting. Just yesterday I was discussing may take on my experience w ldn.
It does not take away most of my symptoms, just the hot sensation from the crps 2. It still stings, changes colours, swelling etc.
I also take ldn for PTSD. I still get obsessive and play things over and over in my mind. I just not so edgey.
Also I seem to have developed a tic after I started taking ldn.
So I want to really understand this research.
Thanks.

PS... I want to add if I miss just one dose.....my body is in terrible pain all over.
Enna70 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (09-14-2015)
Old 09-14-2015, 04:03 AM #2
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

Enna,

I found an LDN forum on a Crohn's disease site which has lots of info. pertinent to all users of LDN.

It seems there are many variables involved in achieving success with LDN.

If you have disturbed sleep it was suggested that you lower the dose you are taking. Others suggest you take your dose 4 hours earlier than you have been taking it. The following link is from another board with different ideas about taking LDN earlier. http://ldn.proboards.com/thread/1470...-zagon-gilhool

People commented that the filler used by the pharmacy caused issues. A few people said they were given slow release, not the fast release LDN required.

Other people commented that they were given old LDN which was not efficacious. Stale pills. Some people found that when they switched providers of LDN they had a remarkable improvement.

One poster named Kev successfully took LDN from 2006-2014, but lost his remission, in his case there were lots of factors which could have contributed to his negative outcome, while another poster said that after taking LDN he was completely cured.

http://www.ldnresearchtrust.org/site...s/dr-zagon.pdf

Last edited by BioBased; 09-14-2015 at 04:31 AM.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mama mac (09-15-2015), RSD ME (09-14-2015)
Old 09-23-2015, 04:30 AM #3
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

https://sfbay.craigslist.org/pen/etc/5232603422.html

The Craigslist ad for the Stanford LDN study.
BioBased is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Stanford University Research Study for Patients with CRPS/RSD (palo alto) olecyn Thoracic Outlet Syndrome 0 07-11-2011 09:59 AM
Stanford University Research Study for Patients with CRPS/RSD (palo alto) olecyn Reflex Sympathetic Dystrophy (RSD and CRPS) 0 07-11-2011 09:57 AM
LSB with botulinum toxin to treat CRPS or Stanford Pain Med., the good and the ugly fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 5 11-30-2009 09:11 PM


All times are GMT -5. The time now is 10:39 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.