Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-27-2007, 07:26 AM #11
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Hi Desi, great news!!! Wow, a knowledgeable, caring, compassionate HOTTIE of a PM doc! w00t!!

My 2cents worth on the PM/not to PM debate... it depends on the pm available in your area. The only one here who sees medicaid patients is a jerk, or so my dr. says. (Don't get me started on what I think about PM's who are so greedy they won't see poor patients.. especially since the patients are only poor because this awful disease makes it impossible to work. Treat US first, so we can go from draining tax coffers to putting money IN, instead, you idiots!! GRRR!)

The first thing he would do is cut me off all my pain meds! He'd want to do blocks and pt, start all over as if I had just been dx'ed. Geez, I've had rsd 14 years now, had ALL the blocks done,ya know, the "been there done that" thing. I am what they call "chronic", those therapies only work if one is "acute".

So, I have no choice but to stick with my pcp and his pa who I like better, lol. It's a careful, fine line we must walk... more like a tightrope, actually. The minute I agree to see a PM, the ins. co. will go by his/her recommendations, regardless of what my dr. and I think.

But you let me know if you dr. moves to my area, or has a twin brother in the same profession, would ya? Huh? Pretty pretty please?!?
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Old 06-27-2007, 07:39 AM #12
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I hate that my first post in days is going to come across as criticisng another member, but I feel I must speak out:

Artist. You aren't the first to "move" a post to another thread in order to see it receive more attention, but like Mike in a different context, I'm not comfortable with this as a growing trend.

A major problem is in the fact that the new thread begins with "reply to...(original poster); I think I would feel distinctly uncomfortable the first time this happened to me.

Also, the "transferred" post would have words that can't really be understood outside the context of the original thread; without that context, the whole post carries an air of being disjointed, confusing. This wouldn't be true every time, but I think it safer to err on the side of caution when thinking of "transferring" posts.

Also, its hijacking!!! Yup, the moment you post that link, you are inviting others to move someplace else, someplace they never would have thought of without the link sitting there. Some would probably continue reading the thread to the end, then return to the link, while some wouldn't.

Does one have to hijack an entire ship? Or would a mere lfeboat be sufficient?

Having had my say, I hope I haven't offended anyone (especially dear friends); I hoped my ideas might help clarify some possible issues that might not immediatly come to mind.

I don't plan to make this a campaign issue, this is far from any hill I might choose to die one, I just wanted to give my thoughts...Vic
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Old 06-27-2007, 08:47 AM #13
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Hey Vic,

All your points are well-taken, I apologise to both Desi and glorybeeric, and the forum, and will never do it again, I see the dangers there.

I hope my intentions were clear; I wanted to reply to glorybeeric properly, who introduced several new topics, without upsetting the flow of Desi's thread, and at the same time hopefully bring a new member's questions to a wider readership. My responses were very much off topic as far as Desi's thread goes and this seemed to me a reasonable solution at the time.

I see I have accomplished the exact opposite of my first intention, and probably now jeopardised the second. Stupid of me.

So sorry everyone, thank you for pointing it out, Vic,
all the best.
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Old 06-27-2007, 01:54 PM #14
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Hey Vic,

I don't want to touch my first response to you and the forum, in principle you are quite right, it is a practice fraught with forum dangers, certainly, and I mean my sincere apology.

But I'd like to add a few things. I'd like to point out that in *this* thread I did not lay claim to "moving" the post, just replying to it in a new thread. The original is still here, in context and can still be responded to. And don't all links included in a post take you away from that post?

I began the new thread with a link to the original post, which links back here, so in the new thread the context is easy to see. But frankly there is little in context in glorybeeric's post, it's mostly kind of off topic or new topic, (a common thing with new posters, we don't mind, lol...) so it makes a stand-alone very well, another reason I thought a niche of its own would be beneficial. But off-topic though it may be, I found it most interesting and wanted to respond, though I couldn't see how to without virtually ignoring Desi's topics and helping to send her whole thread in a different direction.

A good example of this happening (without this coming down to a finger-pointing tussle, I really, really hope) is when you insert your antioxidant/IR injury posts into others' threads with only a tenuous connection, I always have that problem. I've mentioned this before to you in both email/PM and public post, though you've never responded on the subject. Your research-related posts are so strong, and necessarily long, I feel they should stand in a thread alone. I don't like abandoning the original poster or their topic, but your posts often can't be answered in just a few words.

In these cases, I usually don't reply, even though I'd like to, or may give only a partial response; I don't feel I have the right to take over someone else's thriving thread. Or maybe I'm just more of a chicken than most, lol!

In fact I thought that tenuous or inappropriate post insertion resulting in an almost complete switch of topic *was* hijacking, (not the moving or sidebarring of posts) but since it's my day for being wrong...I probably am ...

So, what's a good way to get round all this, any suggestions? Do we just put the little smiley with the OFF TOPIC board on the next new OT posts, even though they may be fascinating, or...what? I suppose we do.

If the OT sign is taken as a hint to the poster to start his/her own thread, that would work, as long as it's understood as such, not as a criticism of the post itself. Or maybe we could find a "Separate Thread" smiley to use...

Certainly, having tried giving glorybeeric's thread its own space, it doesn't look quite kosher...that's not the answer either, I do see that.

Sorry Desi, yet more getting-in-the-wayness
Newish forums ....still finding things to iron out, lol
all the best

Last edited by artist; 06-28-2007 at 04:44 AM. Reason: the usual...
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Old 06-27-2007, 10:02 PM #15
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Smile Great news Desi!

Hi Desi - I'm so glad you were brave enough to try a new doc AND that he was a good one! Happy dance, happy dance! YAYYYYYYY!
big victory hug!
I hope the new stuff works for you. My fingers AND dancing toes are crossed for you.

Molly
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Old 06-28-2007, 04:09 AM #16
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[COLOR="Blue"]Artist, no need to apoligize! IMO you did do the right thing by moving that post, as I too was confused, LOL I just think The "New" person", Hi Glorybee did not know where to post, so I was happy that you moved it. I don't want to start trouble here, it's just, I was NOT at all bothered by the fact of you moving it. I felt cheated! LOL NOT! Love ya! Desi[
Molly, thank you, thank you! Yes, the medication is working, but makes me so tired!! I started taking this June 26th. I am allowed to sprinkle the contents onto a small amout of applesauce. I wonder if it would be ok to sprinlkle only half of it out, as this medication (time released morphine) <30 mg. ?? Anyone have any ideas or has anyone ever tried this? My husband and I have legal custody of a 7 yr. old and all I want to do is sleep on this med. I remember her coming into my room and saying;"Mommy, Im hungry"!. My hubby is sick and I wake up at 3:00 a.m. and feel so guilty, I go downstairs and here is her little yellow bowl filled with milk. (she made herself a bowl of cereal) OMG I feel so quilty, friends.. help! I feel like the worst mother on this planet!! Love and thanks! Love, Desi Q/COLOR]
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Old 06-28-2007, 04:24 AM #17
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Quote:
Originally Posted by theoneRogue420 View Post

Hi Desi, great news!!! Wow, a knowledgeable, caring, compassionate HOTTIE of a PM doc! w00t!!

My 2cents worth on the PM/not to PM debate... it depends on the pm available in your area. The only one here who sees medicaid patients is a jerk, or so my dr. says. (Don't get me started on what I think about PM's who are so greedy they won't see poor patients.. especially since the patients are only poor because this awful disease makes it impossible to work. Treat US first, so we can go from draining tax coffers to putting money IN, instead, you idiots!! GRRR!)

The first thing he would do is cut me off all my pain meds! He'd want to do blocks and pt, start all over as if I had just been dx'ed. Geez, I've had rsd 14 years now, had ALL the blocks done,ya know, the "been there done that" thing. I am what they call "chronic", those therapies only work if one is "acute".

So, I have no choice but to stick with my pcp and his pa who I like better, lol. It's a careful, fine line we must walk... more like a tightrope, actually. The minute I agree to see a PM, the ins. co. will go by his/her recommendations, regardless of what my dr. and I think.

But you let me know if you dr. moves to my area, or has a twin brother in the same profession, would ya? Huh? Pretty pretty please?!?
Hi ya Rogue! Oh, Believe you me, I had a real jerk for a PM dr. I came here to complain! LOL all of you were so great in telling me;"To Hang In There... that I would find a good one".. So, you all know who you are, and I thank you for that. I will for sure let ya know if he ever comes in your area. Rogue, you "crack" me up, too funny!! This PD actually sits down and lets "ME" talk! well, shut my mouth.. LOL he is a sweetie. I told him this too!! P.S. Rogue, I will ask if he has a twin for ya, sweetie.. ok?? Love and hugs to ya! Love, Desi
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