Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-23-2015, 08:37 PM #1
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Post Trying out Quell (wearable intensive nerve stimulation)

Good Evening Friends,

I wanted to share something that I am trying for the first time this evening. I recently saw a Post of Facebook on a device called Quell which is similar to TENS but this is a device that you can wear all day/night. A News segment had done a story on the device and hope it was bringing to pain patients. I am always looking for hope and light at the end of the tunnel so I did a bunch of research and later that day purchased it online.

The device cost $250 which includes the sports band, a month worth of electrodes and it also has a free App for smart phones to help record therapy. If it doesn't work, the company offers a 60 day $ back guarantee. Hopefully it will work.

It came pretty quickly in the mail (2 days) and was charged up upon opening. It took a few minutes to calibrate and now as I sit here typing this I can feel little buzzes (feels like my calf is asleep).

The device works like this: You attach it to your upper calf and turn it on. It switches atomically between 60 mins of "therapy" and 60 minutes of rest all day and through the night. In the night it is much milder so not to wake you. I have pretty severe CRPS in both feet and so far this isn't hurting me. I am also thinking I could turn down the intensity but the feeling doesn't hurt.

I know this is not a Miracle and will not cure CRPS but it is my hope that it will reduce my pain and help me to rehabilitate my feet. Has anyone else tried this?

I will keep updating this post to give everyone some insight to this little device & hopefully this can bring some relief to our world of constant pain.

Here is the link for the news story http://abcnews.go.com/GMA/video/devi...-pain-33826405

The website can be found here:www.quellrelief.com

Hope everyone has a blessed week
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-09-2015), Enna70 (09-24-2015), Littlepaw (09-26-2015)

advertisement
Old 09-26-2015, 10:33 AM #2
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Thumbs Up Update…Day 3…HUGE RELIEF!

This is day 3 and I wanted to share an update on this product and how my body is responding. I am truly amazed by the WINS (wearable intensive nerve stimulator). I had tried the TENS prior in therapy sessions but didn't really see much of a relief. However with this… my pain has been reduced by at least 50%!!!!! 50%!!!!!!! I keep waiting for something to happen (because like all my treatments, my body seems to shift to deny what I am trying to do) but this has honestly been consistent pain relief. I knew that it wouldn't cure me but it is allowing me to strengthen my hurt foot without the ridiculous pain I have been in for the past 5 months.

It is almost comforting as well when I get the alternate hour therapies. I was nervous to sleep with it but it is so subtle when I sleep I don't notice.

I have been alternating legs to wear the Quell & I have CRPS in both feet. The first day I put it on my worse foot which I quickly switched legs because my foot seemed to be confused at first and I had some nerve "tingles" in my foot. It quieted down in about an hour & I think my nerves are happy now

I even forget to take my tramadol & oral ketamine because I feel so good. That has NEVER happened! I have more relief from this than the 5 blocks I had over the past year and the it's only $250. Which in the grand scheme of things, isn't too bad. The company really seems to stand by their product and offers 60 day Money Back Guarantee if it doesn't work.
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (09-27-2015), catra121 (09-26-2015), Enna70 (09-26-2015), Littlepaw (09-26-2015), mama mac (09-26-2015), PurpleFoot721 (09-26-2015)
Old 09-26-2015, 12:00 PM #3
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
8 yr Member
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
8 yr Member
Default

Quote:
Originally Posted by Inspiretoday View Post
This is day 3 and I wanted to share an update on this product and how my body is responding. I am truly amazed by the WINS (wearable intensive nerve stimulator). I had tried the TENS prior in therapy sessions but didn't really see much of a relief. However with this… my pain has been reduced by at least 50%!!!!! 50%!!!!!!! I keep waiting for something to happen (because like all my treatments, my body seems to shift to deny what I am trying to do) but this has honestly been consistent pain relief. I knew that it wouldn't cure me but it is allowing me to strengthen my hurt foot without the ridiculous pain I have been in for the past 5 months.

It is almost comforting as well when I get the alternate hour therapies. I was nervous to sleep with it but it is so subtle when I sleep I don't notice.

I have been alternating legs to wear the Quell & I have CRPS in both feet. The first day I put it on my worse foot which I quickly switched legs because my foot seemed to be confused at first and I had some nerve "tingles" in my foot. It quieted down in about an hour & I think my nerves are happy now

I even forget to take my tramadol & oral ketamine because I feel so good. That has NEVER happened! I have more relief from this than the 5 blocks I had over the past year and the it's only $250. Which in the grand scheme of things, isn't too bad. The company really seems to stand by their product and offers 60 day Money Back Guarantee if it doesn't work.
Please keep us updated!
Enna70 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (09-26-2015), Littlepaw (09-26-2015), PurpleFoot721 (09-26-2015)
Old 09-26-2015, 10:21 PM #4
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
Default

Very interested to see how this works for you.

As I read your post I'm sitting here with my TENS machine on and wishing I could move around. My TENS machine has to be plugged in. It works well, but I'm tied down by a cord.

Please us updated. I'm very interested in how this works for you over the course of a few weeks.
gigicnm is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (09-27-2015)
Old 09-27-2015, 09:15 AM #5
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Default

Quote:
Originally Posted by gigicnm View Post
Very interested to see how this works for you.

As I read your post I'm sitting here with my TENS machine on and wishing I could move around. My TENS machine has to be plugged in. It works well, but I'm tied down by a cord.

Please us updated. I'm very interested in how this works for you over the course of a few weeks.
I will definitely keep you updated. I had to charge it yesterday for about two hours and my pain crept up a little.. I think I am hooked on this and it is nice to be able to move free and have it programmed to give the therapy every other hour.
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (09-27-2015)
Old 09-27-2015, 10:06 PM #6
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
8 yr Member
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
8 yr Member
Default

Quote:
Originally Posted by Inspiretoday View Post
I will definitely keep you updated. I had to charge it yesterday for about two hours and my pain crept up a little.. I think I am hooked on this and it is nice to be able to move free and have it programmed to give the therapy every other hour.
This sounds very encouraging! At first i was concerned about how much it costs but as you mentioned, compared to the cost of injections, its really not expensive if you can eliminate a shot or two. Plz give us another few updates in the coming weeks. Maybe wecan negotiate a group discounted rate? Ha-ha
happygirlpa is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Inspiretoday (10-03-2015), Littlepaw (09-30-2015)
Old 09-30-2015, 08:24 PM #7
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I've decided that I'm going to try this out. I responded well to TENS but it has limited use for me since my RSD spread to almost full body. Sounds like this should work (hopefully) for more generalized pain throughout the body. It's worth a shot anyway...
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Inspiretoday (10-03-2015), Littlepaw (09-30-2015)
Old 10-03-2015, 01:08 PM #8
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Thumbs up Worth a Try

Quote:
Originally Posted by catra121 View Post
I've decided that I'm going to try this out. I responded well to TENS but it has limited use for me since my RSD spread to almost full body. Sounds like this should work (hopefully) for more generalized pain throughout the body. It's worth a shot anyway...
I am at a week and a half and I like it a lot. I took it off to see what would happen for the evening and my pain increased. I now have it on about 90% of the time. My medical team is impressed and don't know anything about them but they were amazed they are now wearable. Let me know how it works for you!
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (10-03-2015)
Old 10-03-2015, 02:17 PM #9
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

This is a good idea if you need pain relief so you could weight bear. Anything which diminishes pain to allow for activity is a good thing, especially if over time it eliminates meds.
BioBased is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Nerve stimulation or laser treatments 123neuro PN Tips, Resources, Supplements & Other Treatments 1 12-06-2013 10:40 AM
Spinal cord stimulation & peripheral nerve stimulation. Bethfnf Peripheral Neuropathy 1 01-22-2013 09:40 PM
VNS- Vagus Nerve Stimulation for treatment resistant depression bizi Bipolar Disorder 8 10-14-2012 10:37 AM
Occipital Nerve Stimulation tailam08 Headache 3 10-08-2012 03:30 AM
Electical stimulation helps nerve regrowth Brian Peripheral Neuropathy 14 03-28-2010 09:18 AM


All times are GMT -5. The time now is 04:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.