Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-26-2015, 07:13 PM #1
Wild Saguaro Wild Saguaro is offline
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Default Hi everyone

Hi everybody from a new member that has had RSD now for 8 years. I have had some good friends on online boards such as these and mostly bad ones. My rsd started from an injury in my right hand and spread full body, today because it happened from a workers comp injury and that got settled and I don't have the money to continue seeking help for it I have gone on my own learning what I can having some luck with herbs and then the disease comes back 3 fold. It almost seems like my rsd has turned into fibro as I understand it can happen.
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Old 09-26-2015, 07:55 PM #2
Enna70 Enna70 is offline
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Howdie, welcome aboard. Hope you find some relief soon.
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Old 09-26-2015, 07:56 PM #3
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Hi and Welcome Wild Saguaro,

It sounds like you have had quite a journey with this illness. We have a really great group here where you will find plenty of understanding and support.

I hope you have a restful night,
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Old 09-26-2015, 08:38 PM #4
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Hi Wild Saguaro,

Welcome, I'm sure you will find that this forum falls amongst the good ones. There are plenty of wonderful people here that offer some great advice and opinions. I hope that you find relief from your long and ongoing struggle.
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Old 09-26-2015, 09:32 PM #5
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welcome wild. i am sorry you have rsd but you found a great place with awesome people that will give you lots of compassion and support. i have had rsd for almost five years and got fibro two years after i got rsd. rsd doesn't really turn into fibro. but rsd can trigger people to get fibro as well. though rsd is different from fibro in that it also have physical symptoms where fibro does not, they both cause widespread unbearable pain. the combination is even worse. but i hope you can find a good pm dr to help give you the treatments and possilby medications you need to help manage your pain. heating pads and warm epsom salt baths help a little too. just remember NO ICE! certain types of rsd are recognized as a disability so maybe you can look into that so that you can get some medical care because with rsd you will need a good pm dr to help manage your pain. (i'm not a dr and that just my opinion and experience with rsd.) i need my pm dr. he has been a lifesaver for me. sending soft hugs and a warm welcome your way.
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Old 09-27-2015, 05:32 AM #6
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Welcome Wild,

Is it possible for you to re-open your case? I have read that people have done this.

It would be a great help for us if you would tell us what you have tried to help you? Is your RSD, hot or cold?

Before I was diagnosed with RSD/CRPS I started using a pain therapy I read about on a fibro site-magnesium and malic acid. Please google it.

What has helped me the most is low dose naltrexone, a therapy pioneered by Dr.Bihari and embraced by a CRPS specialist, Dr. Pradeep Chopra, who has several informative CRPS YouTube videos. In addition to this, pool therapy. LDN, if you haven't tried it already may help your fibro, too.

Originally Posted by PurpleFoot721
Here are all of the links that I have that I would send to those who want to learn a little more about CRPS. Some are a little out of date but still useful, ie. Dr. Hooshmand's site, and the last is the video by Dr. Pradeep Chopra that many here have recommended for me which was very well done. Hope this is what you were looking for.
http://www.rsdhope.org/

http://www.ninds.nih.gov/disorders/r..._dystrophy.htm

http://rsds.org/

http://rsdrx.com/index.html

http://rarediseases.org/rare-disease...ophy-syndrome/

http://www.rsdinfo.com/

http://www.thblack.com/links/RSD/

www.youtube.com/watch?v=s3LKhOZ8mAM
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Old 09-27-2015, 05:55 AM #7
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Did Medicare approve the medical portion of your settlement? Did you spend the medical portion on treatment and meds, and keep good records? Have you applied for SSDI or SSI?
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