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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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New Member
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Thank you so much everyone.
It took me a minute to get back online due to the pain. I have a lot of pain with sound, touch, lights, it all hurts a lot of burning on the lower half of my body. I don't know if that means i have full body or its only in the lower half of my body? I have a Doctor now who i hope will shed light on this disorder. I will look up LDN however I don't know what that is. I've done a wee bit of research on Ketamine infusions, but i still need more information to understand what it is, how it works, and the process. I will also view that video if its still on Ytube. I'm still trying to process what RSD is... More the why than anything else. I would really love to gain more control over my daily functions. I'm very thankful for all the information everyone. gentle ![]() Please Please forgive me if i sound down in the dumps because thats not who i am I still have a lot hope ![]() |
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"Thanks for this!" says: |
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#12 | |||
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Senior Member
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Oh if only I knew why! That is just a hard one. Don't worry about sounding down. We all do sometimes.
LDN is low dose naltrexone. Dr Chopra discusses it in the video. There are a lot of studies on ketamine Pubmed. I have a thread called "Getting ketamine infusion" where I have been documenting my infusions if you are interested in reading a "single case study" with a slant on patient experience. I am glad you found a doctor! ![]()
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Littlepaw Shine Your Bright Light |
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"Thanks for this!" says: | PurpleFoot721 (10-16-2015), stillsmiling (10-16-2015) |
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#13 | |||
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Junior Member
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My CRPS/RSD has recently spread to my entire body and if you ever want to talk I'm here
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"Thanks for this!" says: |
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#14 | ||
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Member
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SWS,
Wishing you a late welcome. I was not on the forum much when you came on. Please don't apologize for your mood. We get it! There is no way that I have found to have this illness and not be down, depressed, confused, scared, etc. Luckily there are room for other emotions too, but probably not when you are suffering as much as you are. If you haven't read the sticky threads on lifesavers and success stories I strongly recommend them. They offered me many great suggestions and inspiration when I first joined. Again welcome, mac Last edited by mama mac; 10-16-2015 at 10:00 AM. Reason: add thread title |
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"Thanks for this!" says: | PurpleFoot721 (10-16-2015) |
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