Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-05-2015, 05:29 PM #1
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Default We're not perfect...and I like that

Hello All,

I just wanted to share how much I appreciate the inclusiveness of our forum. We hail from many places and many backgrounds but share our struggle for health and wellness. We may not always agree on things. Sometimes we will in general be negative, defensive, irritable or easily upset. We are people with daily challenges. Sometimes this will come out in our posts. It is human nature to flub up on occasion.

Last week, I was a little overly frank about my opinion on study sample size. I could've handled it differently and maybe should have but I don't think the poster took it the wrong way, partly because of our posting history, partly because I think they understood where I was coming from and partly because we cut each other breaks. This is a good thing because you never know exactly where someone is at on any given day. Last week I was hopped up on steroids and under tremendous family stress (mentally ill sibling perilously close to homelessness and having a non-hospitalizable breakdown). I certainly didn't contain that all the time and in fact fell apart crying at my piano lesson because my sweet teacher was out and I had a really unkind substitute who asked me to play the same measure over and over again. I had the notes right but not the crescendo, geez... It was not a week I could handle that. I go to have fun after all.

I think it is great that we have a place where we can present the many facets of ourselves and our opinions (within the rules and relatively politely, of course). I appreciate that there is room for this and that the overall milieu is one of acceptance. This forum benefits immensely from the broad range of opinion and experience that gets expressed herein. The conversation is richer for having many voices.

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Last edited by Littlepaw; 10-05-2015 at 07:21 PM.
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Old 10-05-2015, 06:12 PM #2
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Well said, Littlepaw.

Dave.
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Old 10-05-2015, 06:20 PM #3
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Yes, Very well said. Even brought a tear to my eye.

Alaina
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Old 10-05-2015, 06:26 PM #4
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Originally Posted by PurpleFoot721 View Post
Yes, Very well said. Even brought a tear to my eye.

Alaina
New to this forum, but have been reading Posts. I agree, well said.
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Old 10-05-2015, 06:51 PM #5
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Quote:
Originally Posted by Littlepaw View Post
Hello All,

I just wanted to share how much I appreciate the inclusiveness of our forum. We hail from many places and many backgrounds but share our struggle for health and wellness. We may not always agree on things. Sometimes we will in general be negative, defensive, irritable or easily upset. We are people with daily challenges. Sometimes this will come out in our posts. It is human nature to flub up on occasion.

Last week, I was a little sharply frank about my opinion on study sample size. I could've handled it differently but I don't think the poster took it the wrong way, partly because of our posting history, partly because I think they understood where I was coming from and partly because we cut each other breaks. This is a good thing because you never know exactly where someone is at on any given day. Last week I was hopped up on steroids and under tremendous family stress (mentally ill sibling perilously close to homelessness and having a non-hospitalizable breakdown). I certainly didn't contain that all the time and in fact fell apart crying at my piano lesson because my sweet teacher was out and I had a really unkind substitute who asked me to play the same measure over and over again. I had the notes right but not the crescendo, geez... It was not a week I could handle that. I go to have fun after all.

I think it is great that we have a place where we can present the many facets of ourselves and our opinions (within the rules of course). I appreciate that there is room for this and that the overall milieu is one of acceptance. This forum benefits immensely from the broad range of opinion and experience that gets expressed herein. The conversation is richer for having many voices.

Well Said, though people are not benefited by a poster beating someone up just for the sake of opinion. Yes, everyone is human. And it is wonderful to cut people very appropriate breaks. That is great stuff. But this site can't be about taking it out on my neighbor just because I have CRPS either. Each of us is still very responsible for our actions. And it is responsible of us to hold each other accountable for what we say to one another. Otherwise it just becomes a little kingdom that everyone must bow down to or leave. And that serves no one's best interest.
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Old 10-05-2015, 07:12 PM #6
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Gosh, I certainly agree unkind behavior should not be tolerated.

Fortunately, I don't think I have seen anyone beat up over their opinion here. None of us seem to take anything out on one another.That would be terrible. If that were to happen I am pretty sure the group would correct it. Sometimes it is helpful if overt negativity is called out. Bashing anyone is not a good thing. I felt compelled to write a post reply once called "In Defense of Doctors" because though so many of us have doctor horror stories (self included) I just couldn't take the negativity on the thread.

This post is about appreciating all that we bring to the table and acknowledging that we may not always express ourselves as gracefully as possible. Hopefully what we bring is mostly good. But On some days it won't be our best and sometimes we may set others off or feel set off ourselves. I hope we always strive to treat each other with kindness because we all fight a hard battle and need each other's support. I'm just saying that no matter how far apart anyone may be personally I think that short of being ugly, what everyone has to say has value here.
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Last edited by Littlepaw; 10-05-2015 at 07:38 PM.
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Old 10-05-2015, 07:26 PM #7
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Originally Posted by Rain shower View Post
New to this forum, but have been reading Posts. I agree, well said.

Rain shower, Thanks, Hi and Welcome! I am glad you jumped in. If you feel inclined post a new thread on the general CRPS forum so more of us will see you.

Whatever brought you to us I am sorry, but we have a great group and there's always room for one more.

I hope you make yourself at home and we see you around.
Sending hugs,
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Old 10-05-2015, 08:09 PM #8
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Littlepaw,
You are a favorite. You have to know that your light shines brightly here, BUT for anyone to expect you not to be human and have bad days....that's just unreasonable. I for one appreciate the tone of your posts. You have a great attitude. You're REAL! No one would benefit on this forum if we were all guarded by fear and didn't chime in with our experiences, thoughts, or OPINIONS. You do an awesome job at making others feel welcome. I am really sorry for the hard times you are facing with your sibling, and everything else that weighs you down. I think empathy is a beautiful gift to have, and you possess it! This group would not be the same without you! Thank you. Love and Hugs, Jenn

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Old 10-05-2015, 08:37 PM #9
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Quote:
Originally Posted by stillsmiling View Post
Littlepaw,
You are a favorite. You have to know that your light shines brightly here, BUT for anyone to expect you not to be human and have bad days....that's just unreasonable. I for one appreciate the tone of your posts. You have a great attitude. You're REAL! No one would benefit on this forum if we were all guarded by fear and didn't chime in with our experiences, thoughts, or OPINIONS. You do an awesome job at making others feel welcome. I am really sorry for the hard times you are facing with your sibling, and everything else that weighs you down. I think empathy is a beautiful gift to have, and you possess it! This group would not be the same without you! Thank you. Love and Hugs, Jenn

Sent from my XT1028 using Tapatalk
awww! You made me cry and smile at the same time! That is such an interesting experience to have.

Thank you so much for the kind words. I love being part of this forum and appreciate so much that it is here for us and that it is such an accepting place where we can express when needed AND have a multidimensional exchange of ideas. Thanks too for the sympathy. My sister has been really struggling for 9 weeks and I am the one who can best deal with her situation so it gets pretty heavy on me sometimes.

You guys are the best,
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Old 10-05-2015, 08:40 PM #10
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Quote:
Originally Posted by Littlepaw View Post
Gosh, I certainly agree unkind behavior should not be tolerated.

Fortunately, I don't think I have seen anyone beat up over their opinion here. None of us seem to take anything out on one another.That would be terrible. If that were to happen I am pretty sure the group would correct it. Sometimes it is helpful if overt negativity is called out. Bashing anyone is not a good thing. I felt compelled to write a post reply once called "In Defense of Doctors" because though so many of us have doctor horror stories (self included) I just couldn't take the negativity on the thread.

This post is about appreciating all that we bring to the table and acknowledging that we may not always express ourselves as gracefully as possible. Hopefully what we bring is mostly good. But On some days it won't be our best and sometimes we may set others off or feel set off ourselves. I hope we always strive to treat each other with kindness because we all fight a hard battle and need each other's support. I'm just saying that no matter how far apart anyone may be personally I think that short of being ugly, what everyone has to say has value here.
Correct! Bashing anyone is not a good thing. If I see it, I will definitely call it out, even if it is done as part of a person's OPINION. Thanks for this post.
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