Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-17-2015, 03:09 PM #1
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I'm sorry Julie you had such a bad painful reaction to your procedure.

I don't have any experience with what you had done, and I hope the pain in your other areas subside.

Take care
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Old 10-17-2015, 04:41 PM #2
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Hi Julie,

I am sorry you are having such a rough time. Did you get any short term relief? And are you still taking the lyrica?

The nearest analog I have was early in my journey I had buzzing on my entire left side that worked its way up from my foot. My whole nervous system seemed to go into overdrive. I ended up on neurontin and over time it calmed down.

I have been a little concerned about your numbness and pain since the beginning because of the ease of injuring the sural nerve on the lateral side of the foot. Does your doc think you have a nerve injury? I checked over your first post and saw Neurochic expressed concerns you may have something else going on. And while nerve injury can certainly cause CRPS it is sometimes its own thing and can sometimes be treated. If you aren't getting anywhere after a while, I stand by getting checked out by the Peripheral Nerve department at LSU.

Sending hugs and hoping you find relief soon,
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Old 10-17-2015, 07:12 PM #3
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Julie,

I haven't been through the treatment that you have. I have been following your posts since you came on here about 3 weeks ago, the same time I came on. Your symptoms seem very similar to mine when I was about 4 months in to this. It started in my right ankle and foot and started having burning in my left arm and hand, then my left thigh, face, right arm... Last time I saw my doctor, he told me that sometimes the symptoms can travel around. I don't know if he was trying to say that they travel temporarily or if the symptoms can spread, which I know they can. I am hoping that it is not the later but I worry each day that it could be. Not that I am trying to scare you. Since I started on my latest treatment, the treatment that you are on is a bit more aggressive than mine by the way, things started to calm down a bit other than the original site. I am sure that it is just a matter of time for your doctor to come up with the right treatment for you, but I would suggest trying Littlepaw's recommendation and see what LSU has to say if your current doctor can not come up with anything that helps you.

I wish you the best. Finding the right path does take time, so hang in there. I know it is frustrating, but you sound like a strong fighter. You will make it through this.

Alaina
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