Day six. So tired all I can do is sleep. It's an hour each way five days a week. I'm not as strong as last Jan when I did 40 treatments. I'm looking into finding a way to stay where the center is during the week.

Last time I went I was getting a mirror spread from my right affected ankle to my left. It completely reversed that spread. Also all the burning I was starting to feel on my arms and other places. An outlier to my RSD has always been the extreme edema up my entire right leg and upper pelvic region. I'm little and it was about 15 lbs of edema. After 40 sessions of HBOT, I only got a very mild reduction of the edema. Maybe I needed more sessions

Cut to seven months after my last treatments and I'm now starting to feel pain and spread to the left foot again. But worst is the spread of edema to my upper left leg and moving up my entire trunk. I've gained 8 more lbs of edema in the last two months. This time I'll go 80 sessions if they'll let me.

I also have a whooping four hour infusion of ketamine every two to three months. It helps the pain but does nothing for the edema. I've also had bisphosphonate infusions which did nothing for the edema.

All these treatments helped a lot of things but not the edema. This is atypical.

I'll let you know how it goes of people are interested.

Hope you get the relief you are looking for. Keep us posted. ~mac

CD,

I hope you get some relief and find a convenient place to stay. The drive sounds exhausting to do day after day.

Forgive me, but I forget on the edema. Is that all CRPS or is something else going on? It must be miserable.

Best to you with your treaments.
sending hugs and healing love,

Hi CDWall,

We had "met" on a different forum here.

You definitely have your hands full.

Of course we are interested in how you do with the treatments!

I hope you feel better with each passing day.

Please keep us posted.


DejaVu

A few of the things I tried while undergoing HBOT were swimming in warm water, baths with Epsom Salts, massages and infrared saunas. They seemed to help, and certainly can't hurt.

If you can find somewhere to stay and reduce that commute, that would be ideal!

Just a reminder: the Bowen Technique for removing excess fluid.