In the UK when the CRPS goes full body they change the diagnosis to Fibro, however they maybe the same condition watch the first 5 mins of this


https://www.youtube.com/watch?v=b3tRwd7U5nw

Kevscar, I'm sorry but I just can't agree with the comment you make about a CRPS diagnosis being changed to fibromyalgia in the UK when it becomes 'full body' (whatever one defines that as meaning). This doesn't happen in the UK. The prevailing view in the UK is that these are two discrete, entirely different conditions. I'm not sure why you think that this is what happens in the UK but if you have the citations or references describing that this is the case then please could you post them as it contradicts every article and/or piece of research published in any medical journal that I've read to date?

Dr Getson's expressed opinion on fibromyalgia/CRPS being one and the same is his personal hypothesis. He makes other statements in that film which he presents as if they are absolute medical fact when they are his opinion.

When I asked Dr Shenker at Addenbrookes how many of his patients had gone full body, all 4 limbs torso neck scalp eyes mouth and internal organs he said in this country we change the diagnosis but wouldn't say to what months later I came across 3 sufferers who said when it went full body the diagnosis was changed to fibro, it was even brought up in the Parliamentary debate 9/7/2013.
I do realise Dr Getson's opinions are his own but I have asked our medical team to consider the possibility that he's right and also that Phantom Limb Pain may also be CRPS

Holy cow! Kevscar, THANK YOU!!! I had never heard of Dr. Getson, and I was completely fascinated by this! I work for a doctor, so I'm always fascinated by the body and medical workings, and listening to this man was just awesome! I sent the link along to my boss, as well, as he is a sponge and loves to learn new avenues to pursue with his fibro, headache, etc patients.

Thank you so much for this link!