Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 10-27-2015, 09:56 PM #1
DejaVu's Avatar
DejaVu DejaVu is offline
Senior Member
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
DejaVu DejaVu is offline
Senior Member
DejaVu's Avatar
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
Heart (((((( Alaina ))))))

Hi Alaina,

I, too, am very sorry you have had this experience.

One of my doctors knows more about topical medications because she uses them more and wants to know about the options available. My primary care doctor is in favor of them and is just learning about the potentially helpful combinations. He is very open to writing a prescription once he understands what to write. (I often talk with the compounding pharmacist -- and look up topical medications online --to learn the latest and greatest and then show the options I prefer to my doctors.)

I have not had good luck with PAs for the most part. Some of them eventually gain a lot of experience and are highly specialized. Many PAs have minimal training and just aren't ready to handle more complex challenges. M.D.s have more extensive training and experience.

(We are seeing more and more PAs in the ER -- aka A&E -- and many find this fact a bit disturbing. My PCP and specialists are very upset with the fact that the local teaching hospital, also a Level I trauma center, is heavily staffed with PAs. I, personally, have had some very unhelpful experiences with PAs and have had to make sure I see practitioners with more experience/training. I do have a very experienced Orthopedic PA, however. )

I hope you will quickly find a practitioner better able to serve your needs, pronto.


DejaVu
__________________
May we have the courage to live from our hearts, to allow Love, Faith and Hope to light our paths.
.



.

.
DejaVu is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (10-28-2015), Enna70 (10-28-2015), PurpleFoot721 (10-28-2015), St George 2013 (10-27-2015)
Old 10-28-2015, 11:11 AM #2
PurpleFoot721's Avatar
PurpleFoot721 PurpleFoot721 is offline
Member
 
Join Date: Sep 2015
Location: Near Oscoda Michigan
Posts: 469
8 yr Member
PurpleFoot721 PurpleFoot721 is offline
Member
PurpleFoot721's Avatar
 
Join Date: Sep 2015
Location: Near Oscoda Michigan
Posts: 469
8 yr Member
Default

Thank you everybody so far for your comments.

DejaVu, I have had both good and bad experiences with PAs so far. I prefer the PA at my PCP's office to the doctor who owns the practice, but prefer the other doctor that was there up until this past Thursday. The PA that is there is very knowledgeable about general health and he is currently in med school to get his MD. I do like working with him when I have that option but rarely do have that option. If the PA is in a specialized practice, such as pain management or orthopedics, they don't seem to know much other than some basics of the practice they are working for. I think that anyone that is willing to learn can do as much as they can.

I am really trying to look into topicals more now after I checked the results of my blood test that I had the other day. My AST (SGOT) levels have shot up quite a bit since my last test, which was done in June, going from 30 up to 50 now, which tells me my liver is having a little bit of a difficult time processing all of these pills I have to take now. It is not horrible but it is something that needs to be watched. At least the fetyanyl patch gets rid of having to take methadone 3x a day.

As for finding a new doctor, both PCP and PM, I have a few that are supposedly good doctors. I want to wait till the end of the year before I make any changes. I have never liked the hospital network I am in now, but my husband likes the doctor we were seeing. I want to switch out of this hospital network. The only problem is that I can't stand the idea of loosing my ortho by switching PCPs. I think it was his surgery that caused me to end up having CRPS, but he still does everything he can to help me
__________________

.

Alaina
PurpleFoot721 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-29-2015), EnglishDave (10-28-2015), Enna70 (10-29-2015)
Old 10-29-2015, 04:48 PM #3
vintagewine vintagewine is offline
Junior Member
 
Join Date: May 2015
Posts: 68
8 yr Member
vintagewine vintagewine is offline
Junior Member
 
Join Date: May 2015
Posts: 68
8 yr Member
Default

Hi Alaina,

I'm sorry that you were misinformed because Ketamine most certainly can be compounded in a cream and it is helpful for certain types of pain.

My cream had ketamine, marcaine and capsaisin compounded into it.

Good luck
vintagewine is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-29-2015), EnglishDave (10-29-2015), PurpleFoot721 (10-29-2015)
Old 10-29-2015, 09:01 PM #4
DejaVu's Avatar
DejaVu DejaVu is offline
Senior Member
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
DejaVu DejaVu is offline
Senior Member
DejaVu's Avatar
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
Heart (((((( Alaina ))))))

Hi Alaina,

You have been on my mind.
Maybe your PA has an open mind and might appreciate some information on topical approaches? Some practitioners simply don't know and will support/treat their clients once they do know.


DejaVu
__________________
May we have the courage to live from our hearts, to allow Love, Faith and Hope to light our paths.
.



.

.
DejaVu is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (10-30-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 01:32 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.