Hello everyone,

I apologise for being inactive for a while, things have just been really hectic.

So my CRPS in my left arm has got really bad, I can't have anything touching it at all, no long sleeves, hot water etc. My fingers are also completely fixed into a fist (I have been pretty much stuck like that since january) and when I can get close enough with my other hand I can't get them open at all. My right foot has improved a little movement wise, I am off the crutches for now unless its a long distance. Im just getting some pain in my leg where my ankle is twisted inwards. I am still waiting to start some kind of pain management intervention, I don't see the team until the end of the month and there was a mix up over where I was having my intervention treatment so its taken even longer. not only that but the NHS have cut my funding for my physiotherapy so I no longer get it, I am just having to rely on work I can do at home for now and hope the pain team have a better idea.

For the last month or so I have been having problems with my bladder, I am really struggling to go and I am getting that similar CRPS type burning pain in my lower abdomen although not nearly as intense. Its not like UTI pain, and sometimes I can go well over 12 hours without peeing which is probably not very healthy.

Does anyone else experience anything similar? I will mention it to my GP next time I see her but she never takes anything I say very seriously, especially when it comes to new symptoms.

You may want to look and see if there is any information online about the issue and if so, take that to the doctor with you as proof.

Yes speak to your doctor, there are people who can help you deal with this.
I was the same, drinking plenty and going only in a morning and then at bedtime. Not good!
Easy to sort out too, they can test to see which big doesn't work and give you medication or catheters. I use catheters and it's not nearly as bad as it sounds.

Thank you

I will try and get an appointment with my doctor next week (easier said than done). I might also mention it to my CFS/ME consultant, i know its probably not related to that but he tends to take things more seriously xx

Hi Abigailsophiex,

I am sorry you have not been feeling well, overall.

My gynecologist gives talks on autoimmune types of conditions and a condition called: interstitial cystitis. She states she sees these types of conditions co-occurring often. Interstitial cystitis tends to be painful.
Lots of info at www.ichelp.org
Maybe take a look and see if you think you can relate?

I have been diagnosed with IC and I was fortunate enough to bring it under control via diet. Not everyone is so lucky.

There is also a condition referred to as a "neurogenic bladder."
Some info here: http://www.urologyhealth.org/urologi...ogenic-bladder

Many specialized PT practices are concentrating in the area of pelvic health.
There can be pelvic connective tissue dysfunction, forming pelvic myofascial trigger points. http://www.pelvichealthsolutions.ca/...rigger-points/

I hope something in this information is helpful.
Have you been able to tell your doctor you need her to listen to you?

I hope you feel better soon.

Warmly,
DejaVu