Up most of the night again. Found a new sensitive spot, just above my right ankle where my calf begins, its sooo ginger and sensitive and burny. How did I find this spot? Well I rubbed my leg and felt it and just groaned. This beast is convinced it'll eat my body!

At least its keeping up with the rest of my trouble spots, and is frozen cold. I keep feeling twinges in my hands (left more than right..makes sense I'm a lefty) but I refuse to believe these twinges are the beast. If I can just ignore them it won't hurt...right? Hoping to hear from the actual large pain clinic soon, so I can get in for treatment.

**Also side note, I was wondering if any CANADIANS (you must be Canada for this part) knows of any funding/financing for medical equipment for people with CRPS in Canada. I haven't found any. I live in BC on Vancouver Island if that helps**

welcome Lessa. i am sorry you have rsd but am glad you found this forum. everyone here are so supportive, kind and caring. i couldn't manage my rsd pain as well without all of them. i am sending soft hugs your way.

Lessa,

I am not Canadian, but a very good friend of mine lives across the river in Windsor, ON. She has been struggling with her own medical problems and has been a strong advocate for helping others get the medical attention that they need there for her condition. I can ask her if she has any recommendations. It may be a while, I used to see her every Friday, but lately it has been more like once a month. She spends a lot of time traveling. I will send her an email later today and see if I can get a quicker response.

RSD ME - thank you, I'm glad I found this forum as well. There were so many that were inactive and I was worried I'd never find a place on the net.

Purple - Oh that would be lovely if you could! Just let her know I'm in British Columbia, as some of the provincial plans are different based on your province! Thank you so much for your resources!

So far, here is what was sent to me:

"Hi Alaina,

I know the type of housing he is in. As I remember there are no single story military housing available. If he is the spouse of a military member he is covered for a lot of things by the Public Service Health Care Plan under his wife's policy. This is something that all (most?) Canadian military personnel have for their dependents. I would see if he has explored that route. Also his provincial medical plan should be able to help as well."

I don't know if this helps at all but it is something to start with.

~giggles~ I'm a woman too but that was so nice of him to suggest that. I'll look into both and see if I can get help from either of them. I have a gofundme page as well, but...Its hard you know?

I'm not sure if anyone with Crps if anyone tried the ketamine and clododine and gabapentin cream.....it's does good for me I spray my feet first with lidocaine so I'm able to put cream on ...I had lost my bottle of the cream made for me didn't know how much it worked until then highly recommend it

Sent from my SGH-I317M using Tapatalk

Hi Leesa and Foley. A late welcome to the group! Hope to be seeing both of you around in the future. ~mama mac

Hi Lessa, I have been following your thread. In re-reading, I see I did not write yet. My apologies. Sometimes I am reading and remembering what people have written, and forget to write. Duh. Has to be the pain and the meds.

Welcome!
So glad to have you join us!

DejaVu

Hi Foley, Welcome!

You are welcomed to start a thread on this forum, if you wish to do so. I think you will gain more responses, more welcomes, as you will be more visible to everyone.
I look forward to your continued sharing here.


DejaVu