FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
![]() |
#11 | |||
|
||||
Member
|
What I have noticed so far:
Easily agitated Lowered comprehension Inability to put thoughts to words - although I have always had a difficulty with that Used to type 65-70 words per minute, now I find myself always looking at the keyboard, I know where the key is but my hands want to go somewhere else, I guess I would say that is procedural memory Easy discouragement I am sure I could come up with more but I am having a bit of a blank moment right now, just looking at the curser blink, which is so discouraging. Maybe they will come to me later.
__________________
. Alaina |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#12 | |||
|
||||
Member
|
Quote:
Here is an updated listing Loss of Cognitive and Emotional Functions Due to CRPS 1. Planning 2. Organizing 3. Self-Awareness 4. Self-Regulation 5. Initiation of Action 6. Lexical Memory & Word Recall (Loss of Words in Brain, Forgetting how to Spell even Simple Words, Solving Cross Word Puzzles) 7. Conscious Memory of Events 8. Declarative Memory 9. Attention Deficit 10. Tactile Discrimination 11. Problems with Sleep 12. Depression 13. Irritability 14. Poor Judgement 15. Concentration Problems 16. Easily Agitated 17. Panic Attacks 18. Stuttering 19. Stammering 20. Brain Blanking Out 21. Inability to Verbally Express Thought 22. Directional Confusion (Right from Left, North from South) 23. Loss of Theme in Thought 24. Easily Discouraged 25. Lack of Comprehension 26. Loss of Cognitive Fidelity (Hindered in Musical Skills, Being Creative, Speaking Foreign Languages, Playing Chess, Detailed at Work, Typing on a Keyboard Professionally etc.) (List Provided by Patient Not a Medical Professional)
__________________
~ No Pain is Gain ~ -Spike- Last edited by -Spike-; 11-05-2015 at 08:07 AM. |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#13 | |||
|
||||
Senior Member
|
Okay I'm gonna jump in here and cause a little trouble
![]() I can't argue that CRPS affects cognitive and limbic/emotional function BUT many things can contribute to cognitive symptoms we have. We are affected by medications, lack of restorative sleep, general fatigue and chronic pain in general. I don't want to think all of it is the result of changes to my nervous system. I know that I myself am sometimes fuzzy and have to think harder than in the past. My mood is affected by my pain, as is my sleep. But to be honest I was a little scatterbrained and forgetful before this. ![]() I am fighting CRPS brain by taking piano, something I might not have done otherwise. I've had ten lessons now and it is fun. I may have to practice more than the average person, I don't know, but it gets me off thinking about my foot pain. I also go to a once a week Italian class for 8 weeks each semester. Everyone there knows I am still getting treatments for my foot. No one minds when I blank out or miss a day. I go when I can, which is sometimes erratic. Last week I went to the play Seven Wives for Dracula with my son. Since it was at the high school, it was easy parking and seating. It was hilarious, the students did an amazing job and it was only five dollars. It is so easy to get swallowed by this disease. I am learning that throwing a line out to multiple things helps me stay afloat. Try new things, keep those hobbies, adjust things as you need to make them work! For painful days I just got some coloring books for grown-ups. We gotta keep those non-pain synapses firing! Sending gentle hugs, ![]()
__________________
Littlepaw Shine Your Bright Light |
|||
![]() |
![]() |
"Thanks for this!" says: | bluekrikit (11-06-2015), DejaVu (11-08-2015), megsmountain (11-07-2015), NurseKris (11-07-2015), PurpleFoot721 (11-05-2015), Russell (11-06-2015) |
![]() |
#14 | ||
|
|||
Member
|
Neurotin and lyrica interfere with brain synapses. ( I think in my case neurotin and pain have caused my slower brain-I hope to be off N by next year) https://painkills2.wordpress.com/201...rain-synapses/
All the meds, especially ones taken at higher doses have issues. Please forgive me for asking this, but why stay on meds if they aren't helping and may be causing other issues? I noticed that some posters here are taking lots of drugs, but are not getting much relief. When I first posted I was upset that many had doctors willing to give so many meds, while my doctors gave me virtually nothing by comparison. And I have also noticed that no one asks why some of the posters take so many meds-including topicals if they aren't helping. My parents lived to be 87 and 93. Despite having Parkinson's my mother was mentally sharp until the day she died and I believe it was because she took only one drug, supplements and probiotics. My father deteriorated mentally after taking too many meds IMO. When I was taking care of him I was not medically savvy. I accepted that he needed 2 giant pills dispensers and did not know about the negative effects of polypharmacy. Now that I do, I want to avoid becoming a member of the polypharmacy club. A good workout for the brain is an app called elevate. |
||
![]() |
![]() |
"Thanks for this!" says: | bluekrikit (11-06-2015), DejaVu (11-08-2015), Littlepaw (11-06-2015), megsmountain (11-07-2015), Russell (11-06-2015) |
![]() |
#15 | |||
|
||||
Member
|
Quote:
__________________
~ No Pain is Gain ~ -Spike- |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#16 | ||
|
|||
Member
|
Spike,
I am not pointing a finger or trying to be negative. I have done my share of screaming and crying in agonizing pain since this CRPS nightmare so I know what you are saying. In my case I got so little help I can count the drugs on one hand-tramadol did nothing, hydrocodone-helped a bit, but I could not take it at work and I did not like taking it, because it contained acetametaphin (no doctor would write a prescription for the pill without it,) neurotin-helps me with electrical pain and one other drug that I had a reaction to. My sister was here with me, day after day, during the worst. It scared her, enough for her to discuss me with a therapist. Not only was I in pain, I looked insane and I could not function-I basically slept on an aero bed in our den, dragged myself to the bathroom, watched TV. I couldn't read, write a grocery list, comb my hair or change my own clothing. I screamed in the shower-not often, because I couldn't get upstairs, mostly I wiped myself down with baby wipes. The deal with pain is you will do most anything to make it stop. What I do not understand is why continue taking meds that aren't stopping or dulling the pain? |
||
![]() |
![]() |
"Thanks for this!" says: | DejaVu (11-08-2015), megsmountain (11-07-2015) |
![]() |
#17 | |||
|
||||
Member
|
Quote:
__________________
~ No Pain is Gain ~ -Spike- Last edited by -Spike-; 11-06-2015 at 06:58 PM. |
|||
![]() |
![]() |
"Thanks for this!" says: | DejaVu (11-08-2015) |
![]() |
#18 | |||
|
||||
Member
|
I'm gonna jump in here with my two cents.
Meds that work for me are not known until I stop. I elected to stop Cymbalta and my pain level went up. So my neurologist uped the dosage of Gabapentin and that did the trick. As long as I keep with the program it feels as if I don't need them. But if I vary, even slightly, I am quickly reminded that the meds are needed. Unfortunately...
__________________
Hope for better days..... Russ okska'sssini ómahkapi'si . |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#19 | |||
|
||||
Senior Member
|
Good point Russell,
I agree and like to be methodical about trying one thing at a time so I know what is working and what isn't. This also helps sort out side effects and dose changes. After struggling with dizziness and decreasing dose, my nortriptyline is now so low I wondered if it did anything until I tried not taking it for a week! ![]()
__________________
Littlepaw Shine Your Bright Light |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#20 | |||
|
||||
Grand Magnate
|
This site is worth checking out by members who are on one or more prescription meds; http://www.drugs.com/pro/ .
It is searchable for possible med side-effects as well as for possible interactions between different meds. If you are experiencing what may be a side-effect or an interaction, this is worth discussing with your prescribing doctor
__________________
Knowledge is power. |
|||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
CRPS and loss of function. | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Loss of Normal Lordosis | Spinal Disorders & Back Pain | |||
Loss of my bladder function | Coping with Grief & Loss |