Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Closed Thread
 
Thread Tools Display Modes
Old 06-29-2007, 02:45 PM #1
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Default

I also would like to thank you for all the research that you have done and posted for me. Until a few months ago, I didn't know much about RSD. When my 1st doc mentioned that he thought I had it, I thought he was implying that the pain was in my head and not real. after joining the board, I found out what he was saying and it made me feel better about myself. I just misunderstood what he was saying. Everyone here has helped me with the understanding of this problem, and allowed me to vent, worry, console, and talk to others.
Mary
lostmary is offline  
Old 06-29-2007, 04:59 PM #2
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Heart

I too want to add my "Thank You's" to Artist, Roz. Vic and every single one of you for all your research! I had no idea when I first joined this lovely group of men and women how RSD was! you have helped me in so many, many ways.. so a HUGE "Thank you" and I care, love, and will continue to be reading everything I get my hands on from all of you that make this board what is is! Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline  
Old 06-29-2007, 10:34 PM #3
artist
Guest
 
Posts: n/a
artist
Guest
 
Posts: n/a
Default

Hey, thanks all of u

Thanx to *everyone* who contributes to the researching, and to *everybody*for making this a truly unique forum.

Can't use my hands much at the moment, jarring triggers the RA/Sjogren's thing which is in severe flare right now. Sorry all, and thanks mods.

Good to see some book/research posts back on,
(special big one for Roz..) xxx

Last edited by artist; 06-30-2007 at 01:36 AM. Reason: o dear can't spll for toffee 2day...
 
Old 06-30-2007, 01:20 PM #4
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
Default

Hello everyone. If I haven't said it before here is a big THANK - YOU to everyone here.... to those who spend hours sharing their reseach as well as those who offer emotional support there are no words to express my gratitude. My doctors have told me NOTHING about RSD. All they have told me is that I have it. Everything I have learned about this condition has come from the RSD sites and from talking to all you kind folks. This forum has been a godsend to me. There is not one person here that I don't value and appreciate.So, Please keep posting. I still have so much to learn. Jeannie
used to be is offline  
Old 06-30-2007, 05:08 PM #5
Abbie's Avatar
Abbie Abbie is offline
Elder
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default

If it weren't for ALL (and I do mean ALL) of the research and articles that everyone has posted here.... I probably wouldn't be here... I would have given up a long time ago.


You see... I take every bit of research and every article posted to my doctor... he sorts it out as to my case and has been able to give me the best treatment that he can. Every medicine I am on has came from someone's posting.

to all!!!!
THANK YOU FOR ALL YOU DO and FOR ALL YOU'VE GIVEN ME!!!


Abbie
Abbie is offline  
Old 06-30-2007, 08:05 PM #6
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi all,

I do appreciate the research and all that is done for me but I don't agree with limiting questions asked. I think what is being said here is just wrong.

We have newbies coming on here that are not able to sat and research things even in this forum.

I have never seen a thread like this before and it sickens me that people climb on board of an issue that was started on a thread that was closed instead of letting sleeping dogs lie.

There are a lot of people that have been on here forever and I can't name them all but they are always pulling up research for others such as Vicc, DiMarie and so many more and I have never seen them say that they didn't want to help someone new that needs help.

This forum to me has always been a great place for new people to come and learn and old ones to help them learn and also the older ones still need help themselves.

I have seen many of the older ones pop on here every once in awhile for in deperation of support and help even if it's a subject that has been on here 100 times before.

People shouldn't pick and choose who they want to help and who they don't want to help on here. As I said before the new ones need help when they come on here and it should be given. Until they get their diagnoses and the help they need from Drs. to get diagnoses and to get the help they need from Drs. to calm down the pain they are in then they need help here to get them through the roughest time.

I'm sure this will make many mad and that's ok. I feel this thread is just a runoff from the one started on Unrouley1 that was given a hard time because she needs answers and needs help.

If people don't want to do the research to help someone then don't do it but don't make rules for others to follow on here. The older ones that have been on here as I said a long time have went out of there way in all of these years I have been on here to jump on board and help everyone. Why should that change now?

Ada
dreambeliever128 is offline  
Old 06-30-2007, 08:26 PM #7
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
Default

boy oh boy! i had no idea what this thread was about when it first came out and i am still in the dark about it's origin and i am glad of it!
i do not think there is a problem here.
i love the 'informers', my first post here was on how i was thrilled with the knowledge that was shared here but i also do my own research for my own specific problems.
i love those new people who ask questions and are willing to come out and ask a question in the midst of their pain and sadness and if i have an answer, i share it and if i don't i go back and read how others answer.
i love those who vent and feel free to do so and i vent myself at times.
let's all just be thankful and blessed to have the opportunity to know others with rsd, and let's all have empathy, for where each of us are, in our rsd.
joan
__________________
Courage ... doesn't always roar, sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."
JOAN_M is offline  
Closed Thread


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
B 12 results, Huge improvement. too much? Sydney Vitamins, Nutrients, Herbs and Supplements 17 02-07-2007 04:29 PM
B 12 results, Huge improvement. too much? Sydney Vitamins, Nutrients, Herbs and Supplements 1 01-11-2007 04:56 PM


All times are GMT -5. The time now is 08:11 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.