Be sure to explore the sticky threads for info.

*I hope our members are adding any new info to those as they come across it.*

I may have missed it, but want to make sure you are aware that with any procedure there is a risk of RSD/CRPS spreading..

That is one reason SCS or other invasive treatments are more of a last resort thing..

I agree that often these SCS proponents will "push" this as an option , as they do make a nice bit of money.
Some members have said afterword it can be hard to get follow-up or adjustments/setting changes...
They got the money so they forget about the patient/client..

Use our site search to find specific info and past posts ( unfortunately has to be more than 3 letters though)
http://neurotalk.psychcentral.com/search.php

Just study up on it fully before you decide , you can always put it off and consider it later on.
If a high pressure sales approach is tried on you- please walk out...
This isn't a used car sale..
And new improved technology might be available in a few years.

Hi NYM,

I agree with the advice to take enough time to fully research and to obtain some highly educated, hopefully CRPS/RSD expert, opinions.

I also agree, from experiences (mine and others'), some of the people in medicine are not interested in the ultimate welfare of patients/clients. Sad, but true.

When procedures and/or devices are involved, sometimes, the biggest incentives are money and increasing procedure counts. Sad. Beware.

I have not heard of one positive response to SCS for CRPS/RSD. I cannot say there has not been a positive response. I hope to find one...and more. Yet, I have yet to find one.

Pradeep Chopra, M.D., is an expert. He shares a lot of his knowledge and opinions in his videos. The most recent I have found (2014) is on "Diagnosis and Management." https://youtu.be/s3LKhOZ8mAM

He speaks/teaches/shares in several other youtube videos. I hope you will have a chance to listen in.

He practices in Rhode Island.

His site: http://www.painri.com/
Lots of info on his site, too.

He and his colleague are also taking referrals.

"Our group is eager to work in conjunction with referral physicians and primary care doctors. We highly encourage direct contact to any of our Pain physicians and physician assistants to discuss any issue they may have."

I wonder if your primary care doctor might place a call to ask about SCS and about other options for a person your age? I wonder if Dr. Chopra or Dr. Schneiderman might see you for a consult?

There may be a CRPS/RSD expert closer to you? Maybe you are seeing one now?

Please keep talking with us. I hope we can help you to know all you will need to know in order to make a fully informed, balanced decision.

We truly only want the best for you.



DejaVu

P.S. If an SCS is place in a younger person, does it need replacement surgery and how soon or how often?