[Caraleigh]

Originally Posted by Littlepaw

Hi Caraleigh,

You must be so frustrated. There is no need to apologize for that. Your concerns are valid. As a mother, I too would be questioning sending him back into activity without answers I felt confident about.

How many chronic pain patients are 9 years old? This doesn't make any sense to me. He hasn't had a pain syndrome so long that he is completely centralized in his pain interpretation. Be sure that isn't a label they are giving because they can't figure out what is going on.

I would want to know what kind of testing they are considering, what they expect it to show and if it is at all invasive.

I don't remember whether your son's doctors were at a major educational center or not. Travel if you need to. Get second opinions. Take the actual MRI disc and all other imaging with you, not just the reports. Be relentless if it is called for. Doctors have different focuses and skill levels. My first orthopedist didn't think anything was wrong with me. Nine months of appointments and searching led me to an entirely different specialty and finally some helpful answers and treatment. Unfortunately it can take a lot of persistence to get what you need sometimes.

I am so sorry your son and family are going through this. Do not give up until you are ready and feel that your concerns have been adequately addressed.

Keep at it Mom, we support you. You gotta take care of that cub!


Oh question on the popping...I am not sure what you mean by that. I used to feel like I was walking on bubble wrap due to swelling.
There is also something called crepitus where there is air build up in joints that have cartilage damage...it causes creaky, popping sensations.
I think many of us can identify with burning, freezing, gnawing and throbbing pains.

Thank you, this actually helped a lot. I am going to get some second opinions for sure. And that's exactly what they seem to be doing. Just labeling it just as a "chronic pain disorder". The popping in his foot is painful and normally has throbbing with it. I just want to try to get to the bottom of it. its not like the bone scan showed nothing... there was something there. they just keep saying it wasn't definitive enough. Very aggregating!