[buffym]

Originally Posted by Caraleigh

First of all thank you everyone!. that's exactly what happened with him. after the mri his sports doctor thought it could be crps. now the neurologist doesn't think so. im so flustered yet on his papers it states crps. the bone scan show signs of something there but the neurologist said it wasn't definitive enough for him. now hes gone into a "chronic pain disorder" status. I don't know what to do. send him though more test? just live with this answer and him just be on advil the rest of his life. cause they have him on Neurontin now. was on 1x 100mg for a week, just got done with week 2 of 2x for a week now hes on his 2nd day of 3x a day. and it hasn't really changed much other than he sleeps some nights . I know it can take awhile to take effect but, theyre answer was *find a nerve pain med that will work and that's it.... other than counseling and psychologists. I mean god my kid isn't crazy. hes not making it up. *sorry just upset. but the nurse just told me pretty much its my choice *test or deal with that he just has chronic pain and they don't know why. oh yea and im suppose to throw him back into all activities wtf?!

Are you seeing a Dr at a major medical center? I found that none of the Doctors local to us really had any experience with CRPS, and it wasn't until we went to a major children's hospital that we started getting the info we really needed.

[Caraleigh]

We are currently going to dayton children's medical hospital. And don't have another appointment till Feb 1. They want him on the neurontin for another 2 montha. But he still needs the advil. Doesn't seem like the neurontin is doing much.

[buffym]

My daughter was on Nortriptyline, but had bad side effects. They are switching her to neurontin as soon as we get all the Nortriptyline out of her system. If you can tolerate it, the Drs tell me that Nortriptyline can be very effective - if the neurontin doesn't work for your son. Advil doesn't do anything for us. How long has he been on the neurotin?

[swimtime]

We were told that Neurontin takes about 8 weeks to start taking effect, and then becomes increasingly effective with time. It seems like forever, but don't give up on it yet. Having said that, we found Lyrica to be a better option, but it takes some effort on the doctor's part to get insurance to approve it, as it is very expensive. It starts to take effect in just a few days instead of several weeks. Everybody responds differently to meds, so unfortunately, it takes a bit of trial and error to figure out what works.