Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-13-2015, 03:07 AM #11
megsmountain megsmountain is offline
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Quote:
Originally Posted by BioBased View Post
Yes, taking a fish oil and eating salmon is great for you. My sister's colleague, a famous doctor, recommends cod liver oil.

My sister, who has cancer, started taking supplements, using certain oils internally and externally, along with ingesting gelatin 2x a days about 6 months ago, she looks amazing. Her tumors have shrunk, too. The aforementioned doctor wanted to know exactly what my sister was doing, because the change in her appearance was so pronounced from the last time he saw her.

We got started on the gelatin when I recalled that our very young looking, but very old mother, used it every day for years. She also smeared herself with vaseline, which I would not recommend, because it is a petroleum based product. We think that the gelatin contributed to her good health, despite getting Parkinson's (maybe the Vaseline caused this, who knows) she was otherwise remarkably healthy- low blood pressure, low heart rate. She had beautiful skin-probably from the gelatin-collagen and sealing in moisture with the petroleum jelly. She was also a big water drinker.

She also ate healthy long before it was a trend- multiple colorful vegetables always, small meat portions, one small glass of red wine at lunch, never smoked.
Biobased, what is the gelatin? Is it a pill? I know many of my supplements are coated in gelatin? Gelatin from Jello? Like from horse hoofs? Any clarification would be appreciated as I try and do anything that can help. Thanks everyone for your replies
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Old 11-13-2015, 05:15 AM #12
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Quote:
Originally Posted by BioBased View Post
Yes, taking a fish oil and eating salmon is great for you. My sister's colleague, a famous doctor, recommends cod liver oil.

My sister, who has cancer, started taking supplements, using certain oils internally and externally, along with ingesting gelatin 2x a days about 6 months ago, she looks amazing. Her tumors have shrunk, too. The aforementioned doctor wanted to know exactly what my sister was doing, because the change in her appearance was so pronounced from the last time he saw her.

We got started on the gelatin when I recalled that our very young looking, but very old mother, used it every day for years. She also smeared herself with vaseline, which I would not recommend, because it is a petroleum based product. We think that the gelatin contributed to her good health, despite getting Parkinson's (maybe the Vaseline caused this, who knows) she was otherwise remarkably healthy- low blood pressure, low heart rate. She had beautiful skin-probably from the gelatin-collagen and sealing in moisture with the petroleum jelly. She was also a big water drinker.

She also ate healthy long before it was a trend- multiple colorful vegetables always, small meat portions, one small glass of red wine at lunch, never smoked.
I'm sorry to ask again, but what is the gelatin? I know what gelatin is, but is there a specific supplement, etc. that is recommended. I know I take non vegetarian supplements which contain gelatin. Do you know specifically how this helps? Or, can you direct me to a link that contains info on this. I am so careful on what I take, so research is always helpful
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Old 11-13-2015, 06:33 AM #13
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http://www.webmd.com/vitamins-supple...ntname=gelatin


The powdered gelatin I buy is hydrolised so it dissolves in cold or hot liquids and does not gel. It specifically comes from beef so it is probably not be something you would want to ingest. I am taking it because I have bone demineralization in my right foot and ankle-gelatin builds bone. It helps with joint pain, too.
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Old 11-13-2015, 06:34 AM #14
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Megs, I'm so sorry you're going through so much! Since the CRPS is in your hands mostly, I would suggest things that don't require hands too much. If you can tie a shoe still, maybe try skating! It can be fun, however if you're not that skilled, I suggest bringing a friend so you don't have to hit the ground. And plus you get to chill with a friend.

Long walks, with music on was always my fix when I had so much on my mind. I would let my cares drift away to some tune that would level out my soul. Its really awesome, plus should be minimum damage on those digits!

If you can handle it, get someone to bring you a video game where you just destroy stuff. Rachet and Clank are ones that come to mine where you literally can just beat on anything. Gets all the rage out and the corny, but funny puns liven the soul.

Meditate! Deep breathing, if you need guided find a good app for your smart phone to follow. Let your mind rejuvenate.

If you have a dog, or if a friend has a dog, take it for a walk. Love it, play with it. Dogs are so oblivious to everything and just care so much about people its hard not to love them. If you don't have either, go to a local shelter and ask to walk a leashed trained dog. They'll love the extra help, and you'll enjoy company with a maintenance free pooch.

You can go to make up stores. Like MAC to get a make over. You just sit there and get beautiful. Well more beautiful anyways. Great way to talk girl stuff, and its almost as good as a fresh hair cut. Speaking of, get your hair done. Whether its a colour, or a trim, doesn't matter. Ask them to give your hair a wash, since you can't very well. They'll more than likely give you a good scalp massage.

Connect with friends and family, you don't have to talk illness or anything. Just be with them. Watch a movie, or movie marathon. Eat out, or have a BBQ, or just order pizza whatever works. Get some sun, as sun always helps with a dreary mood. Read a book you keep putting off. Anything that makes you happy. If your hands are too sore just shrug it off and find something else that makes you equally happy, but doesn't aggravate your hands. Whatever you do, don't forget that you are worth it, you are beautiful, you are strong, you are amazing, and you will fight whatever comes your way.

If you need to talk we are always here for you Megs.

Sending lots of healing thoughts your way
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Fighting CRPS Type 1 (Cold sadly) Since June 2015.

Eight years after original diagnosis, cold CRPS 1 patients have poorer clinical pain outcomes and show persistent signs of central sensitisation correlating with disease progression. The latter is not the case for warm CRPS 1 patients. *

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Old 11-13-2015, 07:25 PM #15
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Heart ((((( Megsmountain )))))

I apologize for a late response. I have not been able to check in daily lately.

I am sorry you've been presented with extra challenges. Must feel overwhelming at times, megs.

I am also helped by watching comedies, watching some movies/documentaries, going to the movies, meeting friends for coffee/tea/chat or a meal, etc. When I can't go out and I want company, I ask friends to stop in.

I will check back in to re-read more carefully.
I saw your thread title and wanted to respond asap.

Love, Light, Healing Thoughts, Prayers,
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Old 11-13-2015, 08:29 PM #16
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Has anyone watched the Spanish or Korean shows? I love them.
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Old 11-13-2015, 10:06 PM #17
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Megs,
Wanted to say hi and welcome. Some of the ways I have coped over the past year have been lots of music and binge watching TV series. These two things seem to help when nothing else will. Most people recommend comedies, but nothing was funny to me. Very intense programs, some that I probably never would have watched before all this, were the only things that would hold my attention. I also do some forms of meditation, mindfullness practices, writing, drawing and more positive things , but there have been times when I could not focus enough or feel positive enough to do these things. Little by little the positives are coming easier. Try to find something that grabs you and takes you away, whatever that is for you. Counseling is also a great outlet and supportive, especially if you find someone that has a speciality in pain management. This has helped me to grieve and process the negative emotions. Now is is helping me to find a new "normal" and make necessary changes. I hope some of this is useful. ~mac

Last edited by mama mac; 11-13-2015 at 10:07 PM. Reason: typo
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Old 11-13-2015, 10:52 PM #18
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Quote:
Originally Posted by Lessa View Post
Megs, I'm so sorry you're going through so much! Since the CRPS is in your hands mostly, I would suggest things that don't require hands too much. If you can tie a shoe still, maybe try skating! It can be fun, however if you're not that skilled, I suggest bringing a friend so you don't have to hit the ground. And plus you get to chill with a friend.

Long walks, with music on was always my fix when I had so much on my mind. I would let my cares drift away to some tune that would level out my soul. Its really awesome, plus should be minimum damage on those digits!

If you can handle it, get someone to bring you a video game where you just destroy stuff. Rachet and Clank are ones that come to mine where you literally can just beat on anything. Gets all the rage out and the corny, but funny puns liven the soul.

Meditate! Deep breathing, if you need guided find a good app for your smart phone to follow. Let your mind rejuvenate.

If you have a dog, or if a friend has a dog, take it for a walk. Love it, play with it. Dogs are so oblivious to everything and just care so much about people its hard not to love them. If you don't have either, go to a local shelter and ask to walk a leashed trained dog. They'll love the extra help, and you'll enjoy company with a maintenance free pooch.

You can go to make up stores. Like MAC to get a make over. You just sit there and get beautiful. Well more beautiful anyways. Great way to talk girl stuff, and its almost as good as a fresh hair cut. Speaking of, get your hair done. Whether its a colour, or a trim, doesn't matter. Ask them to give your hair a wash, since you can't very well. They'll more than likely give you a good scalp massage.

Connect with friends and family, you don't have to talk illness or anything. Just be with them. Watch a movie, or movie marathon. Eat out, or have a BBQ, or just order pizza whatever works. Get some sun, as sun always helps with a dreary mood. Read a book you keep putting off. Anything that makes you happy. If your hands are too sore just shrug it off and find something else that makes you equally happy, but doesn't aggravate your hands. Whatever you do, don't forget that you are worth it, you are beautiful, you are strong, you are amazing, and you will fight whatever comes your way.

If you need to talk we are always here for you Megs.

Sending lots of healing thoughts your way
I do have a wonderful german shepherd mix doggie and she always cheers me up and we try and get in a hike almost every day. She sitting next to me right now on "her area" of the couch She has gotten me through a lot of bad times and days, she is pretty much my shadow. I have been calling my friends and family for support and they have helped me tremendously. Yes, I do need to get my hair done, that will definitely help me feel better!!!!
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Old 11-14-2015, 08:57 AM #19
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Heart (((( Megs and her Doggie Pal )))))

I love dogs.
Well, I love all animals. Yet, I feel dogs have a certain role and make excellent companions. Most dogs are very empathic, often empathic sponges, and pick up on our emotions.

I am glad you have a canine companion, megs.
I am also glad to read your family/friends are lending lots of support.

I had pushed to get a haircut over this past week. I was not "with it," as I had to take enough pain medication in order to attend the appointment. Between the pain and the med side-effects, I was in rough shape. I had explained to my hairdresser. It went well. I am so glad I had attended my appointment. With the holiday season just ahead, it's difficult for me to get an appointment if I miss the one I have already set with the salon.

Lots going on around here this weekend. There are so many holiday fairs featuring local artisans. It's so much fun. I hope to get out to at least one of the many craft fair locations today.


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Old 11-17-2015, 01:34 PM #20
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Heart (((((( Much Love to Megsmountain ))))))

Hi megs,

You have been on my mind, in my thoughts and prayers.

I hope each day is easier and brighter.
I hope you are having some fun with your German Shepherd doggie. You are both so lucky to have one another!
We are here for you.

(((((( May You Feel Surrounded by Love, by Light, by Comfort and Joy ))))))

Deja
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