[buffym]

Hi, I'm new here, and absolutely new to CRPS. My 9 year old daughter was diagnosed with CRPS on this last Monday, Oct 26th. She has had pain in her right foot and ankle for about 6 months, only when she walks on it. Initially her Dr thought she had Sever's Disease, but after months of no improvement, sent her to an orthopedic specialist who ordered an MRI. The radiologist made a diagnosis of CRPS based on bone edema all over her right foot. She is currently on crutches, and headed to Physical Therapy today. The orthopedist said she should try walking on her foot as much as she can as long as the pain is a 3 or less, but it is more painful that that when she tries. That is the only advice she gave us, and said we should come back for a follow-up in 6 weeks, and she should start PT immediately, which we are doing. It seems there there is more we should or could be doing. I live in a rural area in a small state, so I'm guessing finding Drs & specialists who have experience with this is going to be difficult. I'm overwhelmed with the information on the Internet, and this seems like a knowledgable group from the posts I've read so far. Would like to know what steps I should take to get her in front of the right Drs and specialists. Thank you.