Here is the SoS Forum Link:

http://neurotalk.psychcentral.com/forum29.html

Dave.

hi guitarguy. sorry to hear you have rsd. i see a pm dr to help manage my pain. neurontin and a strong pain killer help me to deal with the pain a little better. that along with an antianxiety and anitdepressant for the stress and insomnia that rsd causes me. i was taking advil to for imflammation but i had to cut back on that lately because of stomach problems i am having lately. i hope that you can find a good pm dr to help you manage your pain better. i don't live in pa so i can't refer you to anyone but i do think there is a dr schwartzmann at drexel univ who treats people with rsd. there are good drs out there, you just have to keep searching for them. hope you feel better soon.

Keep in mind, I started treatment around 2010. I switched to natural alternatives and Tramadol due to some med side effects and family pressure.
I also have been seeing a therapist who centers on chronic pain and addiction.
I am worries if I go back on the medication, my wife may leave me. Then I am done at that point. Nothing left.

My doctor agreed today over the phone to get me back on Nucynta so we are going to try and make the switch today. I hope it doesn't impact my family and work.

Dr Schwartzmann at Drexel Univ retired.

Does anyone know if taking an herb like Kratom can then cause a medication to stop working? I just switched back to Nucynta today after taking nothing but Kratom for months and the max of tramadol for a few weeks. First dose of nucynta and the pain is still hell!
Maybe Tapentatol has to build up?

...second dose and still nothing. In the past it always worked right away!

I can't tell you anything about Kratom....but I can tell you that if you have been taking Tramadol then you have been on an opioid pain medication all this time. So maybe there is less for family to worry about with you going back on Nucynta . I mistakenly thought you had nothing for pain besides the kratom.

Perhaps the Nucynta will not affect you as badly as before since you are taking the XR version. You were on regular version before right? I would give it some time to work. If your pain has been really high it may take a few days to get you out of flare. The XR of drugs work differently and may not pack as much immediate punch.

I am glad to read that you have a counselor. It is good to have support for your burdens. Would your wife consider going with you for even just a session or two to work through the med issue? Or maybe go to your next doctor's appointment? Perhaps that might shift things a bit...

I am rather late coming in to this thread, but I would like to welcome you to Neurotalk anyway. I have been quite busy lately with a recent move but today, I spent some time catching up here.

First, I want to say hang in there and don't give up. It can be difficult for a spouse to understand what it is like to go through the pain that you are going through and I do hop that yours will give it time and go with you to a few therapy sessions to get a little understanding of what exactly you are going through. This can often be beneficial for both members of the relationship to start building it a little stronger again.

I am glad to see that you have decided to start on Nucynta again and am hoping that it helps you again this time around without the skin irritation that you had last time. This is a drug that I have never heard of until my PM wanted to put me on it a few months back. The only reason that he did not is he didn't know if my insurance would cover it and also knew that I have not been able to return to work since January, leaving me and my spouse struggling a little financially. From what I understand, and someone correct me if I am wrong, Nucynta is similar to tramadol and methadone but falls somewhere in between the two as far as strength. If Nucynta does cause a skin reaction again, I am hoping that they will be able to find something that can help.

As many of the others here have mentioned, if something works for you, it is not anybody else's business what medications you are taking. Back pain can be tough to deal with, but unless they have experienced the pain of CRPS, there really is no way that they can compare their pain to yours. Even if they have experienced it, no two people are the same so it is difficult to compare their pain with yours.

Please hang in there. We are all here for you if you need someone to talk to.

I really have no life. In 2007 my changed and been going down hill since.

I got my Nucynta prescription and ot helps so much with pain.
However, the stupid pharmacy did not have enough Nucynta to fill the month prescription and the next was not till next week. So they gave me half a month's worth of meds and said to ask the doctor for a prescription for remain month.
They can't do partial orders with narcotics. What a load of horse manure. So I have to suffer and barely live thanks to their stupid rules.

I am going to have the pharmacist call my doctor to ask for the script. It isn't my fault the system is screwed up.

Hi,

Yes, my wife has been to many appointments.
She has trouble living with me in pain and said it would be better for her if she got out of the relationship. Sad.

I know it frustrates her that I am hard to be around and that I sometimes have trouble getting household chores and errands.

really have no life. In 2007 my changed and been going down hill since.

I got my Nucynta prescription and ot helps so much with pain.
However, the stupid pharmacy did not have enough Nucynta to fill the month prescription and the next was not till next week. So they gave me half a month's worth of meds and said to ask the doctor for a prescription for remain month.
They can't do partial orders with narcotics. What a load of horse manure. So I have to suffer and barely live thanks to their stupid rules.

I am going to have the pharmacist call my doctor to ask for the script. It isn't my fault the system is screwed up

Guitarguy,

You are not worthless. Anyone who tells you that does not value what life really is. Sure there are times that it is difficult to be able to do much, but I am sure that you can ind moments, no matter how short they may be, that you are able to do things to help others out. It may be as simple as just being able to sit and listen, or enjoy a good conversation with a loved one. Take advantage of, and cherish those moments with those you love or care about.

You may want to find another pharmacist. I know that many schedule II & III prescriptions have been under new regulations since August of last year, but if a doctor writes a prescription for you, and the pharmacist does not have enough to fill it, they are supposed to note in their system, or even written on the prescription bottle with their initial, that they so much was given, and a balance that is owed. My pharmacist has dome that three times so far. Once with Methadone, Once with Norco, (hydrocodone), and recently with Percocet, (oxycodone). These were all done within the past three months.

Times may be difficult for you right now, but if you are willing to fight to do better, you will get better. Gentle hugs for you

I can't believe how much effort it is to type this.
I cried myself to sleep last night. Nothing is helping today. Feels like my left arm and right foot are being crushed, literally.

I am going to ask about something stronger than nucynta or a pain pump or nerve block.

Alaina, I tried rite aid and cvs pharmacy. They also checked all their locations in the area and nobody had enough Nucynta. They said they rarely stock it. They also said it is illegal to fill a script partial and give me the rest later when it comes to narcotics. They said by law they can't give me half for example and provide the rest later.

Weird?

They said the doctor will have to give another script for remaining med.

Only time I ever got a partial order filled is when I had a pharma whom I befriended and he let me slide and was the one to allow me partial orders.