[Caraleigh]

Hi everyone, my name is cara. My son's right foot pain (since may) had what brought me here. We've been on a long road of trying to figure out why he's having pain everyday. It started out in May of taking Tylenol 2 or 3 times a day. Then saw his doctor who referred us to a podiatrist who said he just had some blood blisters underneath one of his tendons. Told us to ice his foot three times a day Advil three times a day for two weeks and wear a wrap. After that didn't work he still having pain everyday still have to give him advil at least once or twice a day his doctor referred us to having xrays. Nothing came up abnormal. Then he sent us to Children's Medical to see a sports medicine doctor. She has helped us more than the rest of them have. She diagnosed him with Seevers disease. he's gone through three or four months of physical therapy which really hasn't helped too much. She also told him to do the advil and ice for one week 3 times a day. After not think too much of an improvement with that we did a recheck and then she wanted to send him to an MRI she believed he has an accessory navicular bone. Which the test showed that he did however it's not really causing the problem none of the muscles or tendons are inflamed are having issues with the bone yet. So then now she has diagnosed him with complex regional pain syndrome or rsd. And she has referred us to a neurological doctor within the hospital for pain management. Needless to say with all this going on trying to deal with his father and the family we are currently divorced so it makes things complicated. And dealing with the teachers and the gym teacher and his homework which he's behind in its just been a really rough road. But she's in her late twenties and I know it's different for the age group slightly. I just wanted to come here to have some other mothers and families who have been dealing with the same situations or similar to try to get some help and a piece of mind. And possibly some new outlooks on things that they have gone through.
Above was a older post but this is our current situation. ( Nothing difinitive that they believe caused it. At the very least I remember in may he slightly rolled his ankle in gym but that's it. ) He's been out of school now for a week and 3 days. And I have him signed up for intermittent home instruction. On Friday he goes in for a full body bone scan. To clarify the diagnosis. I'm just hoping they find something. All roads have been a dead end it seems lately. And I have also found a counciling center to try. I'm hoping it will bring comfort for us. They have him on prednisone and neurontin. Which had shown side effects. ..so now just taking prednisone till its finished and then start neurontin back up to see if it might help. I'm besides myself. Has anyone gone though this kind of situation?* How did you cope as a parent. How do you keep your spirits up and your child's. I have my own business and it's sliding away due to the responsibilities of care. (Well and money) thanks everyone for taking the time to read this!