Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-14-2016, 01:07 PM #1
mama mac mama mac is offline
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Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
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mama mac mama mac is offline
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Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
8 yr Member
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Alaina,
Just read on Zinna's wonderful thread about how much you continue to suffer. I am so sorry that you are hurting so badly. I feel so sad for you. I respect your courage to keep fighting even when all that you have tried is not working. It is a roller coaster ride between hope and despair with each new treatment.
My injury is quite different from yours (not as severe) and my Crps is not as severe either, but I thought I'd share what is working for me. I had a 3 day ketamine/steroid/magnesium infusion at the first of October. This made a difference but I don't think this is the best ketamine protocol (it was all that was available near my area). The swelling has stayed down throughout most of my foot since this and I have fewer flares. Started LDN at the end of October and this has helped greatly with the burning. PT of couse has helped. To begin a bisphosphonate this week. Neridronate is not yet available in this country. There are several trials going on now. I figure any bisphosphonate is better than none though. I also have oral ketamine for pain. I dissolve it under my tongue and it does help short term (an hour or two.) I use it sparingly. I also take vit. D,C, Fish Oil and magnesium.
You have a great list going. Just thought I would chime in on whats working for me. I'm by no means back to normal, but I am at least more functional and in less pain. I know this is a blessing many would give anything for. I still so miss the old me though.
You are in my thoughts~mac

Last edited by mama mac; 01-14-2016 at 01:10 PM. Reason: spelling and typo
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