[IamJenn]

I wanted to apologize for coming on here and just vomiting my frustration without taking the time to really introduce myself properly. So I guess doing this now is better than never doing it...so here goes it.

Hello everyone, my name is Jenn and I am from a tiny town on the island of Oahu, Hawaii. I am married ( our anniversary is tomorrow) and we have 3 children, my oldest boy is 20, our middle boy is 10 and our little girl is 2 1/2 but she thinks she's grown and bosses everyone around 🙄 Lol!

Like I said in my earlier post, I have been diagnosed with CRPS of the entire left extremities for the past 7 almost 8 years. Previous to being diagnosed I was in pain searching for answers for 3 years. I also have anxiety and depression. I hate being touched and it has affected my marriage tremendously. I'm sure I got hormonal issues as well but that's a whole 'bother situation. Anyway, I've done many injections I'm on tons of meds and I'm just over it all.

I work full time as a Med Tech for the gov't. And although I like what I do, it's not really what I LOVE to do. I'm still trying to figure out what I want to be when I grow up! Lol! I'm really thinking of quitting because it's just too much stress for me and I keep calling in sick due to my flares. But then I realize I need the money and it's not really a bad place to be.


This past year has been the most trying for me as my 70 year old mother has had issues with her health and I'm the only child who really cares for her. We live next to each other so that's a good and a bad at the same time. She has Lupus and had a stroke in March and now needs knee surgery so I've been really caught up in her medical needs and neglecting mine. If that wasn't enough, my marriage has taken a downward spiral with all kinds of issues. My husband has a business that I help with and its a lot of work for me. Not to mention taking care of the house and the littles.

I just think I need people in my life who truly understands my daily struggle because the people around me are confused at what to do and sometimes cause me more pain because they don't "get it". I'm grateful that there is a place for me to go where y'all know or understand what I'm going thru. So I thank you all for being here!

That's pretty much it for me....I think. My brain hurts right now so if y'all wanna know more you can just ask! 😊

Thank you again everyone and I'm sorry for not saying all of this before I vented in my first post. Hope y'all have a great night.

Aloha,

Jenn

[-Spike-]

Originally Posted by IamJenn

I wanted to apologize for coming on here and just vomiting my frustration without taking the time to really introduce myself properly. So I guess doing this now is better than never doing it...so here goes it.

Hello everyone, my name is Jenn and I am from a tiny town on the island of Oahu, Hawaii. I am married ( our anniversary is tomorrow) and we have 3 children, my oldest boy is 20, our middle boy is 10 and our little girl is 2 1/2 but she thinks she's grown and bosses everyone around �� Lol!

Like I said in my earlier post, I have been diagnosed with CRPS of the entire left extremities for the past 7 almost 8 years. Previous to being diagnosed I was in pain searching for answers for 3 years. I also have anxiety and depression. I hate being touched and it has affected my marriage tremendously. I'm sure I got hormonal issues as well but that's a whole 'bother situation. Anyway, I've done many injections I'm on tons of meds and I'm just over it all.

I work full time as a Med Tech for the gov't. And although I like what I do, it's not really what I LOVE to do. I'm still trying to figure out what I want to be when I grow up! Lol! I'm really thinking of quitting because it's just too much stress for me and I keep calling in sick due to my flares. But then I realize I need the money and it's not really a bad place to be.


This past year has been the most trying for me as my 70 year old mother has had issues with her health and I'm the only child who really cares for her. We live next to each other so that's a good and a bad at the same time. She has Lupus and had a stroke in March and now needs knee surgery so I've been really caught up in her medical needs and neglecting mine. If that wasn't enough, my marriage has taken a downward spiral with all kinds of issues. My husband has a business that I help with and its a lot of work for me. Not to mention taking care of the house and the littles.

I just think I need people in my life who truly understands my daily struggle because the people around me are confused at what to do and sometimes cause me more pain because they don't "get it". I'm grateful that there is a place for me to go where y'all know or understand what I'm going thru. So I thank you all for being here!

That's pretty much it for me....I think. My brain hurts right now so if y'all wanna know more you can just ask! ��

Thank you again everyone and I'm sorry for not saying all of this before I vented in my first post. Hope y'all have a great night.

Aloha,

Jenn

Hello Again Jenn,

I think one of the hardest things for people is to try to understand what it is like for us to have CRPS. And it is within the disconnect of their truly understanding us that I believe one of their and our greatest struggles lies. This disease is a constant non stop attacker. It robs us of pain free living, and robs us of our normal functionality. Every single day CRPS continues to effect our jobs, our home life, our work and our fun, because it makes us calculate how much we can do before our pain knocks us off of our daily activities. It affects our brains, affects our spinal cords, and affects our nerves running through our bodies. It even hits us emotionally. So, while we are constantly being bombarded by these hardships, people that care about us can easily get left behind. They might hear us cry out in pain, and then intellectually try to figure out what that means in terms of their interacting with us. And while they re still trying to figure that out, in just a few moments later, our CRPS is attacking us in some other respect, like having a CRPS affected limb that isn't functioning normally. This makes things difficult for those that we care about, because along the way they get lost in the maze of confusion that our disease brings. One minute it is this with us, then it's that. And it never ends! In my mind this is what makes having CRPS so difficult on our relationships with the people we care about. I for one admire your stick to it-ness with your job, with your kids, with your husband. You've invested yourself in the areas of life that are truly important, and to be forthright in your struggles is not a sign of weakness, but a sign of how hard this disease is to deal with and a sign that you care enough about the things you've invested in to simply vent, when the disease that you did not ask for nor do you want becomes difficult to bear. Your honest venting is an honorable and admirable quality. May God richly bless you, as you continue to press on and deal with this MONSTER known as CRPS!

-Spike-

[RSD ME]

welcome Jenn! i am sorry you have rsd but am glad you found this forum. everyone here is so caring and supportive. they have helped me deal with my rsd better and i consider them part of my family. i hope you know that you can vent anytime. please don't apologize for that. we all understand how hard it is to live the constant pain and struggles of rsd. hope you are having a better day today. take care.